RISP State Profiles FY 2020

Year	Size/Type Unknown	Family Home	Own Home	Host/Foster Family	Group 1-6	Group 7-15	Group 16+	LTSS Recipients
1998		141	136	140	111	7	0
1999	2,127	178	150	171	134	8	0	2,768
2000	0	3,737	365	425	430	25	0	4,982
2001	0	3,700	300	152	414	0	0	4,566
2002	0	3,700	365	195	380	0	0	4,640
2003	0	3,700	350	225	475	0	0	4,750
2004	0	3,700	238	244	360	0	0	4,542
2005	0	3,700	224	172	440	0	0	4,536
2006	0	3,700	292	172	370	63	0	4,597
2007	2	3,500	293	200	287	11	0	4,293
2008	69	79	427	201	275	10	0	1,061
2009	9	195	72	155	810	5	11	1,257
2010	148	231	399	209	340	5	11	1,343
2011	0	375	486	258	457	0	0	1,576
2012	309	292	473	218	428	0	0	1,720
2013	762	332	205	165	350	50	15	1,879
2014	474	332	411	203	528	0	0	1,948
2015	275	282	687	198	550	58	0	2,050
2016	294	277	705	170	600	54	0	2,100
2017	287	277	705	170	600	54	0	2,093
2018	418	271	575	108	607	47	0	2,026
2019	1,158	643	546	83	0	0	0	2,430
2020	2,210	271	755	97	0	0	0	3,333

Year	ICF/IID Residents	Waiver+ Recipients	Waiting for Medicaid Waivers	1915 (i) or (k)	Other State Plan HCBS
1982	118	0
1983	113	0
1984	109	0
1985	104	0
1986	99	0
1987	107	0
1988	102	0
1989	97	0
1990	94	0
1991	91	0
1992	86	0
1993	85	0
1994	78	32
1995	68	127
1996	59	190	318
1997	10	353	337
1998	0	424	337
1999	0	466	735
2000	0	665	958
2001	0	844	1,000
2002	0	884	1,239
2003	0	931	1,400
2004	0	973	917
2005	0	1,003	1,400
2006	0	1,008	1,400
2007	0	1,011	943
2008	0	1,061	618
2009	0	1,248	981
2010	0	1,343	662
2011	0	1,486	604
2012	17	1,703	461
2013	14	1,865	613
2014	6	1,942	679
2015	6	2,044	743	0
2016	7	2,093	537	0
2017	0	2,093	527	0
2018	0	2,167	904	0
2019	0	2,430	652	162
2020	14	2,553	766	154	191

Medicaid Authority	Average Spending Per Person
ICF/IID (all)	$212,137
State Plan HCBS	$36,116
Waiver+ (all)	$74,369

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2020 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2020 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2020

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Alaska

Assisted Living Homes are licensed to provide services to elderly and adults with physical or mental disability. Some provide group home services to individuals 18 years or older funded by these HCBS waivers: Intellectual and Developmental Disabilities (IDD), Adults with Physical and Developmental Disabilities (APDD) or Children with Complex Medical Conditions (CCMC). The number of group homes is from FY 2021. A decrease in IDD grant program funding contributed to an increase in the number of people waiting for services in FY 2020. Alternate data for Waiver and ICF/IID expenditures from Mathematica (Murray et al, 2023). Alternate data for ICF/IID and nursing home residents are from AHCA (2020a, 2020b, & 2020c).