FY 2017 RISP State Profiles

New Jersey

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

14,132

439

1,762

781

3,744

0

23,659

99

15,331

460

1,797

1,020

1,961

820

3,531

204

25,124

00

16,431

791

1,779

1,094

2,065

842

3,587

0

26,589

01

17,891

811

1,723

1,163

2,174

834

3,507

553

28,656

02

19,124

815

1,657

1,230

2,367

843

3,945

0

29,981

03

20,150

812

1,599

1,286

2,623

837

3,243

593

31,143

04

21,908

789

1,529

1,330

2,813

823

3,195

603

32,990

05

23,095

782

1,432

1,404

2,956

782

3,783

0

34,233

06

24,044

737

1,376

1,363

3,017

791

3,125

681

35,134

07

25,470

768

1,272

1,414

3,103

860

3,069

728

36,684

08

26,915

895

1,276

1,484

3,278

855

2,971

726

38,400

09

26,838

927

1,276

438

4,097

1,834

4,817

0

40,227

10

13,335

136

1,112

1,928

4,149

892

3,850

25,403

11

12,205

112

1,032

1,953

3,582

1,002

3,734

23,767

12

11,892

115

987

2,046

3,954

813

3,567

23,419

13

13,297

126

907

2,133

4,292

945

3,504

24,980

14

12,874

117

804

2,210

4,678

922

2,829

24,434

15

11,647

92

728

2,207

4,905

842

2,395

22,816

16

12,961

83

662

2,191

5,077

812

2,331

24,117

17

13,922

79

600

2,193

5,357

752

2,180

0

25,083

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

4,366

0

8,731

1983

4,245

0

8,664

1984

4,124

1,317

8,596

1985

4,002

2,025

8,529

1986

3,881

1,993

8,461

1987

3,815

2,596

8,394

1988

3,819

2,873

8,517

1989

3,822

3,170

8,640

1990

3,820

3,270

8,763

1991

3,818

3,655

8,886

1992

3,942

3,971

11,592

1993

3,892

4,191

14,298

1994

3,975

4,729

17,005

1995

4,060

5,033

19,711

1996

4,091

5,242

3,944

22,417

1997

3,948

5,705

4,608

22,810

1998

3,744

6,199

4,608

23,659

1999

3,531

6,635

4,768

25,124

2000

3,487

6,894

5,012

26,589

2001

3,436

6,978

2,902

28,656

2002

3,370

7,486

2,450

29,981

2003

3,166

8,122

2,670

31,143

2004

3,124

8,455

3,009

32,990

2005

3,053

9,075

3,384

34,233

2006

3,020

9,611

3,694

35,134

2007

2,963

9,923

3,844

36,684

2008

2,878

10,048

4,649

38,400

2009

2,865

10,081

40,227

2010

2,694

10,083

25,403

27,940

2011

2,578

10,315

23,767

28,357

2012

2,426

11,297

23,497

28,809

2013

2,189

10,645

3,932

24,980

28,941

2014

1,835

10,700

3,765

24,434

28,037

2015

1,612

10,972

3,664

22,816

25,330

2016

1,477

10,922

3,201

24,117

26,523

2017

1,402

11,874

2,830

25,083

27,352

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$328,958

Waiver+ (all)

$88,249

Waiver+ 0 to 21 years

$0

Waiver+ 22+ years

$88,249

Waiver by age in family home or not family home spending per person not available.

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for New Jersey

Data from FY2010 forward has been adjusted to reflect the transfer of children’s services to another state department.