4. How do the places people live differ by age and by state?

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Map of the United States showing the number of adults with IDD per 100,000 of the population who received services in 2019. Mississippi served the fewest with 166 adults with IDD per 100,000. Wisconsin served the most with 808 adults with IDD per 100,000. The national average was 357 adults with IDD per 100,000.

•In 2019, state IDD agencies served 357 adults with IDD per 100,000 of the population.

•The number ranged from 166 adults per 100,000 in Mississippi to 808 adults per 100,000 in Wisconsin.

•Adults were much more likely to qualify for and get state IDD services in some states than in others.

•This information was not available for South Dakota, Texas, Arkansas, Georgia or New Hampshire for 2019.

How do living arrangements differ by age?

This chart has 6 bars showing the number of people receiving services by living arrangement and by age in 2019. The first two bars show that 206,833 children 21 years or younger and 291,672 adults 22 years or older get Waiver funded support while living with a family member. The second two bars show that 23,786 children and 291,672 adults get Medicaid Waiver funded support while living in settings other than the home of a family member. The final two bars show that 5,466 children and 62,032 adults lived in Intermediate Care Facilities for Individuals with Intellectual Disabilities.
  • Nearly all children getting supports live with a family member.
  • Most adult HCBS recipients live in a setting other than the home of a family member such as their own home, a host or foster family home, or a group home.
  • Nearly all people living in ICF/IID facilities are adults.

How do states differ in their use large state run IDD facilities?

This set of four United States maps highlight states based on how many people lived in state-run IDD facilities housing 16 or more people on June 30, 2019. Overall, there were 16,200 people with IDD living in 112 large state-run IDD facilities in 33 states.

The top-left map highlights 18 states that did not have any large state-run IDD facilities. These states are Alabama, Alaska, District of Columbia, Hawaii, Idaho, Indiana, Kentucky, Maine, Michigan, Minnesota, Montana, New Hampshire, New Mexico, Oregon, Rhode Island, Tennessee, Vermont, and West Virginia.

The top-right map highlights 22 states with between 16 and 499 people living in large state-run IDD facilities. These are Arizona, California, Colorado, Connecticut, Delaware, Georgia, Iowa, Kansas, Louisiana, Maryland, Massachusetts, Missouri, Nebraska, Nevada, New York, North Dakota, Oklahoma, South Dakota, Utah, Virginia, Wisconsin, and Wyoming.

The bottom-left map highlights seven states with between 500 and 999 people living in large state-run IDD facilities. The states are Arkansas, Florida, Mississippi, Ohio, Pennsylvania, South Carolina, and Washington.

The bottom-right map shows four states with between 1,000 and 2,915 people living in large state-run IDD facilities. These states are Illinois, New Jersey, North Carolina, and Texas.

•By June 2019, 18 states had closed all state-run IDD facilities serving 16 or more people.

•An estimated 16,200 people lived in 109 facilities in the remaining states.

•Four states housed more than 1,000 people with IDD in large state run IDD facilities.

•Seven states housed between 500 and 999 people in large state run IDD facilities.

•The remaining states housed fewer than 500 people in those settings

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