Outcome Measurement Program Case Studies

Academy Health. (2016). Measuring the quality of Home and Community-Based services: A conversation about strategic directions for research and policy.

Accreditation Council for Facilities for the Mentally Retarded (ACF/MR). (1973). Standards for community service agencies serving persons with mental retardation and other developmental disabilities. Chicago: Joint Commission on the Accreditation of Hospitals.

Accreditation Council on Services to People with Disabilities (ACD). (1993). Outcome based performance measures. Towson, MD.

Barrett, L. (2014). Home and community preferences of the 45+ population 2014. AARP.

Booth, M., & Fralich, J. (2006). Performance measurement: Managing and using home and communitybased services data for quality improvement. New Brunswick, NJ: The Community Living Exchange Collaborative at Rutgers Center for State Health Policy and the National Academy for State Health Policy.

Butterworth, J., Hiersteiner, D., Engler, J., Bershadsky, J., & Bradley, V. (2015). National Core Indicators©: Data on the current state of employment of adults with IDD and suggestions for policy development. Journal of Vocational Rehabilitation, 42(3), 209–220.

Carroll, C., Patterson, M., Wood, S., Booth, A., Rick, J., & Balain, S. (2007). A conceptual framework for implementation fidelity. Implementation Science, 2(1), 40.

Centers for Medicare and Medicaid Services. (2016). CMS quality strategy.

Centers for Medicare and Medicaid Services. (2017). Information Bulletin:  Extension of Transition Period for Compliance with Home and Community-Based Settings Criteria. Retrieved from https://www.medicaid.gov/federal-policy-guidance/downloads/cib050917.pdf

Century, J., & Cassata, A. (2016). Implementation Research: Finding Common Ground on What, How, Why, Where, and Who. Review of Research in Education, 40(1), 169–215.

Century, J., Rudnick, M., & Freeman, C. (2010). A framework for measuring fidelity of implementation: A foundation for shared language and accumulation of knowledge. American Journal of Evaluation, 31(2), 199–218.

Claes, C., Van Hove, G., Vandevelde, S., van Loon, J., & Schalock, R. (2012). The influence of supports strategies, environmental factors, and client characteristics on quality of life-related personal outcomes. Research in Developmental Disabilities, 33(1), 96–103.

Crowe, S., Cresswell, K., & Robertson, A. (2011). The case study approach. BMC Med Res Methodol, 11(100). https://doi.org/10.1186/1471-2288-11-100

Damschorder, L. J., Aron, D. C., Keith, R. E., Kirsh, S. R., Alexander, J. A., & Lowery, J. C. (2009). Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implementation Science , 4(50). https://doi.org/10.1186/1748-5908-4-50

Dusenbury, L., Brannigan, R., Falco, M., & Hansen, W. B. (2003). A review of research on fidelity of implementation: implications for drug abuse prevention in school settings. Health Education Research, 18(2), 237–256.

Eiken, S., Saucier, P., & Burwell, B. (2016). Medicaid Long-Term Services and Supports Beneficiaries in 2012. Bethesda, MD: Truven Health Analytics, September.

Ensslin, B., & Kruse, A. (2016). State Trends in the Delivery of Medicaid Long-Term Services and Supports. Center for Health Care Strategies, INC., Brief.

Feinstein, C., & Caruso, G. (2003). Independent Monitoring for Quality; Pennsylvania’s Experience in Quality Enhancement in Developmental Disabilities (V. J. Bradley & M. H. Kimmich, Eds.). MD: Paul H. Brookes.

Finlay, W. M. L., & Lysons, E. (2002). Acquiescence in Interviews With People Who Have Mental Retardation. Mental Retardation, 40(1), 14–29.

Gardner, J. F., Carran, D. T., & Nudler, S. (2001). Measuring quality of life and quality of services through personal outcome measures: Implications for public policy. International Review of Research in Mental Retardation, 24(75), 100.

Gardner, J. F., Carran, D. T., & Nudler, S. (2005). The attainment of personal outcomes by people with developmental disabilities. Mental Retardation, 43, 157–173.

Gardner, J. F., Nudler, S., & Chapman, M. S. (1997). Personal outcomes as measures of quality. Mental Retardation, 35(4), 295–305.

George, A. L., & Bennett, A. (2005). Case studies and theory development in the social sciences. MIT Press.

Goreczny, A. J., Miller, B., Dunmire, B., & Tolge, G. J. (2005). Inter-rater reliability of the Pennsylvania independent monitoring for quality program’s essential data elements scale. Research in Developmental Disabilities, 26(3), 231–241.

Hasson, H., Blomberg, S., & Dunér, A. (2012). Fidelity and moderating factors in complex interventions: a case study of a continuum of care program for frail elderly people in health and social care. Implementation Science, 7(1), 23.

Heller, T., Miller, A. B., & Factor, A. (1999). Autonomy in residential facilities and community functioning of adults with mental retardation. Mental Retardation, 37(6), 449–457. https://doi.org/10.1352/0047-6765

Heller, T., Miller, A. B., & Hsieh, K. (2002). Eight-Year Follow-Up of the Impact of Environmental Characteristics on Well-Being of Adults With Developmental Disabilities. Mental Retardation, 40(5), 366–378. https://doi.org/10.1352/0047-6765(2002)040<0366:eyfuot>2.0.co;2

Houseworth, J., Ticha, R., & Smith, J. (2018). Developments and living arrangements and choice for people with intellectual and developmental disabilities. Policy Research Brief, 27(1).

Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.

Human Services Research Institute . (2019). National Core Indicators: In-person Survey: 2017-2018 Final Report. Retrieved from https://www.nationalcoreindicators.org/resources/reports/#reports-in-person-survey-formerly-known-as-the-adult-consumer-survey-national-report

Lakin, K. C., & Hewitt, A. (2002). Medicaid Home and Community Based Services for persons with developmental disabilities in six states. Minneapolis, MN: University of Minnesota, Institute on Community Integration, Research and Training Center on Community Living.

Mowbray, C. T., Holter, M. C., Teague, G. B., & Bybee, D. (2003). Fidelity criteria: Development, measurement, and validation. American Journal of Evaluation, 24(3), 315–340.

National Core Indicators . (2012). Using National Core Indicators (NCI) Data for Quality Improvement Initiatives. Retrieved from National Association of State Directors of Developmental Disabilities Services and Human Services Research Institute website: https://nationalcoreindatators.org

National Core Indicators . (n.d.). National Core Indicators, 2018 Update. Retrieved from https://www.nationalcoreindicators.org/upload/core-indicators/NCI_Annual_Meeting_Report_2018_1.pdf

National Quality Forum . (2017). Quality in home and community-based services to support community living: Addressing gaps in performance measurement.

O’Donnell, C. L. (2008). Defining, conceptualizing, and measuring fidelity of implementation and its relationship to outcomes in K–12 curriculum intervention research. Review of Educational Research, 78(1), 33–84.

Ragin, C. C. (1999). The distinctiveness of case-oriented research. Health Services Research, 34(5 Pt 2), 1137.

Schalock, R. L., Bonham, G. S., & Verdugo, M. A. (2008). The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities. Evaluation and Program Planning, 31(2), 181–190.

Schalock, R. L., Verdugo, M. A., Gomez, L. E., & Reinders, H. S. (2016). Moving us toward a theory of individual quality of life. American Journal on Intellectual and Developmental Disabilities, 121(1), 1–12.

Smith, G., & Ashbaugh, J. (2001). National Core Indicators Project: Phase II Consumer Survey Technical Report. Retrieved from Human Services Research Institute website: https://www.hsri.org

Taylor, S. J., & Bogdan, R. (1998). In-depth interviewing. Introduction to Qualitative Research Methods, 3, 87–116.

The Kaiser Commission on Medicaid and the Uninsured . (2016). Medicaid home and community based services update for 2013. DC: Kaiser Family Foundation.

Thomas, G. (2011). A typology for the case study in social science following a review of definition, discourse, and structure. Qualitative Inquiry, 17(6), 511–521.

Tichá, R., Lakin, K. C., Larson, S. A., Stancliffe, R. J., Taub, S., Engler, J., & Moseley, C. (2012). Correlates of everyday choice and support-related choice for 8,892 randomly sampled adults with intellectual and developmental disabilities in 19 states. Intellectual and Developmental Disabilities, 50(6), 486–504.

Van Loon, J. H., Bonham, G. S., Peterson , D. D., Schalock, R. L., Claes, C., & Decramer, A. E. (2013). The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability. Evaluation and Program Planning, 63(1), 80–87.

Wandersman, A., Duffy, J., Flaspohler, P., Noonon, R., Lubell, K., Stillman, L., & Saul, J. (2008). Bridging the gap between prevention research and practice: the interactive systems framework for dissemination and implementation. American Journal of Community Psychology, 31(3–4), 171–181.

Wolff, J. L., Spillman, B. C., Freedman, V. A., & Kasper, J. D. (2016). A national profile of family and unpaid caregivers who assist older adults with health care activities. JAMA Internal Medicine, 176(3), 372–379.

Yazan, B. (2015). Three approaches to case study methods in education: Yin, Merriam, and Stake. The Qualitative Report, 20(2), 134–152.

Yin, R. K. (1994). Case study research: design and methods series. In Biography (No. 5). London: Sage Publications.

Zimmerman, S., Love, K., Cohen, L. W., Pinkowitz, J., & Nyrop, K. A. (2014). Person-centeredness in home-and community-based services and supports: domains, attributes, and assisted living indicators. Clinical Gerontologist, 37(5), 429–445.