Outcome Measurement Program Case Studies

References

  • Academy Health. (2016). Measuring the quality of Home and Community-Based services: A conversation about strategic directions for research and policy.

  • Accreditation Council for Facilities for the Mentally Retarded (ACF/MR). (1973). Standards for community service agencies serving persons with mental retardation and other developmental disabilities. Chicago: Joint Commission on the Accreditation of Hospitals.

  • Accreditation Council on Services to People with Disabilities (ACD). (1993). Outcome based performance measures. Towson, MD.

  • Barrett, L. (2014). Home and community preferences of the 45+ population 2014. AARP.

  • Booth, M., & Fralich, J. (2006). Performance measurement: Managing and using home and communitybased services data for quality improvement. New Brunswick, NJ: The Community Living Exchange Collaborative at Rutgers Center for State Health Policy and the National Academy for State Health Policy.

  • Butterworth, J., Hiersteiner, D., Engler, J., Bershadsky, J., & Bradley, V. (2015). National Core Indicators©: Data on the current state of employment of adults with IDD and suggestions for policy development. Journal of Vocational Rehabilitation, 42(3), 209–220.

  • Carroll, C., Patterson, M., Wood, S., Booth, A., Rick, J., & Balain, S. (2007). A conceptual framework for implementation fidelity. Implementation Science, 2(1), 40.

  • Centers for Medicare and Medicaid Services. (2016). CMS quality strategy.

  • Centers for Medicare and Medicaid Services. (2017). Information Bulletin:  Extension of Transition Period for Compliance with Home and Community-Based Settings Criteria. Retrieved from https://www.medicaid.gov/federal-policy-guidance/downloads/cib050917.pdf

  • Century, J., & Cassata, A. (2016). Implementation Research: Finding Common Ground on What, How, Why, Where, and Who. Review of Research in Education, 40(1), 169–215.

  • Century, J., Rudnick, M., & Freeman, C. (2010). A framework for measuring fidelity of implementation: A foundation for shared language and accumulation of knowledge. American Journal of Evaluation, 31(2), 199–218.

  • Claes, C., Van Hove, G., Vandevelde, S., van Loon, J., & Schalock, R. (2012). The influence of supports strategies, environmental factors, and client characteristics on quality of life-related personal outcomes. Research in Developmental Disabilities, 33(1), 96–103.

  • Crowe, S., Cresswell, K., & Robertson, A. (2011). The case study approach. BMC Med Res Methodol, 11(100). https://doi.org/10.1186/1471-2288-11-100

  • Damschorder, L. J., Aron, D. C., Keith, R. E., Kirsh, S. R., Alexander, J. A., & Lowery, J. C. (2009). Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implementation Science , 4(50). https://doi.org/10.1186/1748-5908-4-50

  • Dusenbury, L., Brannigan, R., Falco, M., & Hansen, W. B. (2003). A review of research on fidelity of implementation: implications for drug abuse prevention in school settings. Health Education Research, 18(2), 237–256.

  • Eiken, S., Saucier, P., & Burwell, B. (2016). Medicaid Long-Term Services and Supports Beneficiaries in 2012. Bethesda, MD: Truven Health Analytics, September.

  • Ensslin, B., & Kruse, A. (2016). State Trends in the Delivery of Medicaid Long-Term Services and Supports. Center for Health Care Strategies, INC., Brief.

  • Feinstein, C., & Caruso, G. (2003). Independent Monitoring for Quality; Pennsylvania’s Experience in Quality Enhancement in Developmental Disabilities (V. J. Bradley & M. H. Kimmich, Eds.). MD: Paul H. Brookes.

  • Finlay, W. M. L., & Lysons, E. (2002). Acquiescence in Interviews With People Who Have Mental Retardation. Mental Retardation, 40(1), 14–29.

  • Gardner, J. F., Carran, D. T., & Nudler, S. (2001). Measuring quality of life and quality of services through personal outcome measures: Implications for public policy. International Review of Research in Mental Retardation, 24(75), 100.

  • Gardner, J. F., Carran, D. T., & Nudler, S. (2005). The attainment of personal outcomes by people with developmental disabilities. Mental Retardation, 43, 157–173.

  • Gardner, J. F., Nudler, S., & Chapman, M. S. (1997). Personal outcomes as measures of quality. Mental Retardation, 35(4), 295–305.

  • George, A. L., & Bennett, A. (2005). Case studies and theory development in the social sciences. MIT Press.

  • Goreczny, A. J., Miller, B., Dunmire, B., & Tolge, G. J. (2005). Inter-rater reliability of the Pennsylvania independent monitoring for quality program’s essential data elements scale. Research in Developmental Disabilities, 26(3), 231–241.

  • Hasson, H., Blomberg, S., & Dunér, A. (2012). Fidelity and moderating factors in complex interventions: a case study of a continuum of care program for frail elderly people in health and social care. Implementation Science, 7(1), 23.

  • Heller, T., Miller, A. B., & Factor, A. (1999). Autonomy in residential facilities and community functioning of adults with mental retardation. Mental Retardation, 37(6), 449–457. https://doi.org/10.1352/0047-6765

  • Heller, T., Miller, A. B., & Hsieh, K. (2002). Eight-Year Follow-Up of the Impact of Environmental Characteristics on Well-Being of Adults With Developmental Disabilities. Mental Retardation, 40(5), 366–378. https://doi.org/10.1352/0047-6765(2002)040<0366:eyfuot>2.0.co;2

  • Houseworth, J., Ticha, R., & Smith, J. (2018). Developments and living arrangements and choice for people with intellectual and developmental disabilities. Policy Research Brief, 27(1).

  • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.

  • Human Services Research Institute . (2019). National Core Indicators: In-person Survey: 2017-2018 Final Report. Retrieved from https://www.nationalcoreindicators.org/resources/reports/#reports-in-person-survey-formerly-known-as-the-adult-consumer-survey-national-report

  • Lakin, K. C., & Hewitt, A. (2002). Medicaid Home and Community Based Services for persons with developmental disabilities in six states. Minneapolis, MN: University of Minnesota, Institute on Community Integration, Research and Training Center on Community Living.

  • Mowbray, C. T., Holter, M. C., Teague, G. B., & Bybee, D. (2003). Fidelity criteria: Development, measurement, and validation. American Journal of Evaluation, 24(3), 315–340.

  • National Core Indicators . (2012). Using National Core Indicators (NCI) Data for Quality Improvement Initiatives. Retrieved from National Association of State Directors of Developmental Disabilities Services and Human Services Research Institute website: https://nationalcoreindatators.org

  • National Core Indicators . (n.d.). National Core Indicators, 2018 Update. Retrieved from https://www.nationalcoreindicators.org/upload/core-indicators/NCI_Annual_Meeting_Report_2018_1.pdf

  • National Quality Forum . (2017). Quality in home and community-based services to support community living: Addressing gaps in performance measurement.

  • O’Donnell, C. L. (2008). Defining, conceptualizing, and measuring fidelity of implementation and its relationship to outcomes in K–12 curriculum intervention research. Review of Educational Research, 78(1), 33–84.

  • Ragin, C. C. (1999). The distinctiveness of case-oriented research. Health Services Research, 34(5 Pt 2), 1137.

  • Schalock, R. L., Bonham, G. S., & Verdugo, M. A. (2008). The conceptualization and measurement of quality of life: Implications for program planning and evaluation in the field of intellectual disabilities. Evaluation and Program Planning, 31(2), 181–190.

  • Schalock, R. L., Verdugo, M. A., Gomez, L. E., & Reinders, H. S. (2016). Moving us toward a theory of individual quality of life. American Journal on Intellectual and Developmental Disabilities, 121(1), 1–12.

  • Smith, G., & Ashbaugh, J. (2001). National Core Indicators Project: Phase II Consumer Survey Technical Report. Retrieved from Human Services Research Institute website: https://www.hsri.org

  • Taylor, S. J., & Bogdan, R. (1998). In-depth interviewing. Introduction to Qualitative Research Methods, 3, 87–116.

  • The Kaiser Commission on Medicaid and the Uninsured . (2016). Medicaid home and community based services update for 2013. DC: Kaiser Family Foundation.

  • Thomas, G. (2011). A typology for the case study in social science following a review of definition, discourse, and structure. Qualitative Inquiry, 17(6), 511–521.

  • Tichá, R., Lakin, K. C., Larson, S. A., Stancliffe, R. J., Taub, S., Engler, J., & Moseley, C. (2012). Correlates of everyday choice and support-related choice for 8,892 randomly sampled adults with intellectual and developmental disabilities in 19 states. Intellectual and Developmental Disabilities, 50(6), 486–504.

  • Van Loon, J. H., Bonham, G. S., Peterson , D. D., Schalock, R. L., Claes, C., & Decramer, A. E. (2013). The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability. Evaluation and Program Planning, 63(1), 80–87.

  • Wandersman, A., Duffy, J., Flaspohler, P., Noonon, R., Lubell, K., Stillman, L., & Saul, J. (2008). Bridging the gap between prevention research and practice: the interactive systems framework for dissemination and implementation. American Journal of Community Psychology, 31(3–4), 171–181.

  • Wolff, J. L., Spillman, B. C., Freedman, V. A., & Kasper, J. D. (2016). A national profile of family and unpaid caregivers who assist older adults with health care activities. JAMA Internal Medicine, 176(3), 372–379.

  • Yazan, B. (2015). Three approaches to case study methods in education: Yin, Merriam, and Stake. The Qualitative Report, 20(2), 134–152.

  • Yin, R. K. (1994). Case study research: design and methods series. In Biography (No. 5). London: Sage Publications.

  • Zimmerman, S., Love, K., Cohen, L. W., Pinkowitz, J., & Nyrop, K. A. (2014). Person-centeredness in home-and community-based services and supports: domains, attributes, and assisted living indicators. Clinical Gerontologist, 37(5), 429–445.