RISP Data Bytes

RISP Data in the Media: Telling the Story of IDD Services

The RISP Data Bytes logo and the title of the September 2025 issue of RISP Data Bytes: "RISP data in the media: Telling the story of IDD services."

Using data from the Residential Information Systems Project (RISP) is a powerful way to tell the story of residential services for people with intellectual and developmental disabilities (IDD). It transforms complex statistics into a compelling narrative influencing policy, funding commitments, and public education. RISP moves beyond simply stating numbers and instead uses them to illustrate the human impact of services and the value of continued funding for residential and community supports.

Using RISP data in the media is a critical advocacy strategy that highlights the impact, reaches a wider audience, and builds a strong case for funding. First, it highlights the impact of IDD services by providing concrete evidence of progress, showcasing trends such as the shift from large, institutional settings to smaller, community-based homes. Second, by being featured in news articles, social media, and other public-facing channels, RISP data can reach a wider audience, including policymakers, elected officials, and the public. This media visibility increases awareness of the needs of people with IDD and emphasizes the importance of continued funding for these vital projects. Finally, using RISP data in media outreach helps to build a strong, data-driven case for funding. The numbers and trends provide concrete evidence of the success and necessity of these initiatives, making a more persuasive and credible argument for their long-term sustainability than anecdotal stories alone.

Here are a few examples of how RISP data and expertise are used to engage diverse audiences at the local, state, national, and international levels.

Richmond magazine (2025) used RISP and ICI data for their story, "Like Nobody’s Watching ," highlighting data on the different types of residential settings and how adults with IDD would like to live.

Disability Scoop (2025) reprinted a Chicago Tribune piece titled “Wait For Community Placements Can Take Years For Those With IDD,” which used RISP data to highlight the high number of state-run institutions in Illinois.

The President’s Committee for People with Intellectual Disabilities (2024) used RISP data and infographics for their report, “Advancing Independence and Community Integration for All: Supporting Individuals PDF .

In early 2025, Inclusion International and Inclusion Europe consulted with RISP Principal Investigator, Sherri Larson, on the development of the DI Response initiative which is focused on closing institutions and supporting people with I/DD to move into the community around the world. Lessons and approaches from RISP are being applied to coordinate and report data in other countries.

With Intellectual Disabilities Through High Quality Home and Community Based Services.” PDF This report provides committee recommendations on improving and expanding access to Home and Community Based Services for individuals with IDD.

Why it matters

Using data from the Residential Information Systems Project (RISP) in the media is a crucial way to advocate for continued funding, particularly for Projects of National Significance. The use of RISP data in the media ensures that this progress is seen and understood, which is vital for securing the long-term funding required to sustain and expand these important projects. It turns complex information into a powerful tool for education and advocacy.

Data Source

Larson, S. A., Neidorf, J., Begin, B. C., Pettingell, S., & Sowers, M. (2024). Long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2020. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

Authors

Sheryl A. Larson, Kelly Nye-Lengerman, and Jon Neidorf. The authors acknowledge the contributions by Jerry Smith, Sarah Curtner, and John Smith to this product.

The RISP project gets funds from the Administration on Community Living, U.S. Department of Health and Human Services, Cooperative Agreement #90DNPA0006 with supplemental funding from the National Institutes on Disability, Independent Living and Rehabilitation Research Grant #90RTCP0011.

Abbreviations used: IDD = Intellectual or Developmental Disabilities; HCBS = Home and Community Based Services

Updated 9/8/25