FY 2017 RISP State Profiles

Indiana

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

1,249

2,400

495

0

1,036

2,762

2,057

0

9,999

99

0

3,315

494

0

1,043

2,754

2,167

0

9,773

00

1,358

1,447

490

0

1,037

2,754

1,632

0

8,718

01

2,471

517

0

1,004

2,749

1,542

1,793

10,076

02

2,256

2,256

782

0

949

2,677

1,355

0

10,275

03

4,587

4,586

782

0

949

2,677

1,103

0

14,684

04

4,815

4,815

543

0

978

2,652

880

0

14,683

05

4,103

4,795

286

0

3,254

0

736

2,733

15,907

06

3,391

4,775

29

4,676

1,194

2,436

670

0

17,171

07

3,643

3,300

16

3,358

1,214

2,436

470

0

14,437

08

4,592

3,900

283

2,029

1,436

2,576

464

0

15,280

09

6,046

4,073

267

396

1,453

2,617

451

0

15,303

10

5,881

4,404

248

479

1,672

2,525

396

42

42

11

7,592

4,086

243

0

1,661

2,454

333

42

16,369

12

6,888

3,932

207

0

1,657

2,447

290

1,602

17,023

13

7,850

3,778

204

0

1,522

2,554

272

1,497

17,677

14

10,682

5,492

206

0

1,605

2,339

163

515

21,002

15

12,756

5,936

221

0

1,456

2,454

46

0

22,869

16

14,175

6,180

234

0

1,443

2,390

45

1,080

25,547

17

17,035

6,449

253

0

1,403

2,387

50

0

28,278

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

2,798

0

3,961

1983

3,189

0

4,246

1984

3,579

0

4,531

1985

3,970

0

4,816

1986

4,360

0

5,101

1987

4,690

0

5,386

1988

5,101

0

5,811

1989

5,512

0

6,237

1990

5,780

0

6,662

1991

6,048

0

7,087

1992

6,234

0

7,503

1993

6,213

447

7,920

1994

6,224

529

8,336

1995

6,176

594

8,753

1996

5,986

816

2,067

9,169

1997

5,938

1,067

9,100

1998

5,855

1,405

9,999

1999

5,964

1,554

9,773

2000

5,423

2,081

8,718

2001

5,295

2,646

2,800

10,076

2002

4,981

3,802

6,000

10,275

2003

4,729

7,983

7,000

14,684

2004

4,447

9,307

5,629

14,683

2005

3,931

9,285

15,907

2006

4,207

9,431

15,068

17,171

2007

4,012

9,976

13,896

14,437

2008

4,099

10,247

17,919

15,280

2009

4,129

10,961

17,382

15,303

2010

4,042

11,246

17,142

42

2011

3,886

12,283

16,369

2012

3,839

12,786

17,023

2013

3,760

13,917

5,109

17,677

19,294

2014

3,595

17,407

3,533

21,002

22,323

2015

3,319

18,950

2,579

22,869

27,414

2016

3,249

22,298

1,934

25,547

29,948

2017

3,179

25,099

1,573

28,278

29,278

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$84,732

Waiver+ (all)

$29,526

Waiver+ 0 to 21 years family home

$7,448

Waiver+ 22+ years family home

$18,257

Waiver+ 0 to 21 years not family home

$35,245

Waiver+ 22+ years not family home

$69,436

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Indiana

Beginning in FY 2014, Indiana expanded its Family Supports Waiver to serve more people ages 21 years or younger. This change reduced the length of time that individuals and their families wait for services. Because the Family Supports Waiver has an annual cap on the costs of an individual’s service, and does not include a residential component, average Waiver expenditures per person also declined.