RISP State Profiles FY 2019

Illinois

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

0

9,391

798

116

3,149

5,193

8,324

26,971

1999

1,238

9,227

674

109

3,503

5,241

8,136

28,128

2000

0

11,864

1,579

93

3,767

5,395

7,676

30,284

2001

0

11,864

1,579

93

3,677

5,395

7,633

30,241

2002

0

11,864

1,579

93

3,677

5,395

7,633

30,241

2003

0

11,864

1,579

93

3,677

5,395

7,419

30,027

2004

0

7,721

7,721

252

3,681

6,113

6,959

32,447

2005

0

11,324

3,775

245

3,716

6,463

6,660

32,183

2006

0

11,005

3,669

216

3,895

6,612

6,452

31,849

2007

0

10,762

3,550

201

3,716

7,067

6,178

31,474

2008

0

12,516

4,172

209

3,869

7,179

6,041

33,935

2009

0

12,248

4,083

189

3,909

7,357

5,773

33,559

2010

0

11,996

3,999

254

3,999

7,703

5,545

33,496

2011

0

9,000

3,000

235

4,667

8,971

5,073

30,946

2012

144

9,708

1,884

244

4,769

8,202

5,223

30,173

2013

0

10,416

767

260

4,401

7,193

5,116

28,153

2014

241

11,258

709

216

4,871

7,242

4,773

29,310

2015

1

11,390

733

255

5,210

7,467

4,535

29,591

2016

554

11,477

1,681

273

4,467

7,543

4,364

30,359

2017

0

12,578

1,983

304

4,389

7,187

4,372

30,813

2018

0

12,627

1,969

302

4,361

7,164

4,289

30,712

2019

0

13,011

1,961

322

4,389

7,116

4,276

31,075

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

8,144

0

1983

8,346

0

1984

8,549

40

1985

8,751

543

1986

8,953

543

1987

10,346

664

1988

10,605

637

1989

10,864

680

1990

11,404

724

1991

11,943

1,338

1992

12,311

2,006

1993

12,160

2,850

1994

10,979

4,590

1995

10,935

3,761

1996

10,416

5,267

1997

10,500

5,400

1998

10,789

6,037

1999

10,678

6,500

2000

10,310

6,787

2001

10,267

6,787

2002

9,923

6,787

2003

10,053

9,785

2004

9,723

9,727

2005

9,592

10,457

2006

9,402

12,409

2007

9,213

12,800

2008

9,023

14,496

10,446

2009

8,525

15,302

12,289

2010

8,567

16,954

15,042

2011

8,460

18,108

14,905

2012

8,344

18,355

12,076

2013

7,852

20,300

22,999

2014

7,360

21,226

22,000

2015

6,788

22,141

17,566

2016

6,615

23,744

9,725

0

2017

6,593

22,810

10,778

0

2018

6,512

23,138

10,339

0

2019

6,380

23,588

14,827

0

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$94,743

Waiver+ (all)

$42,258

Waiver+ 22+ years

$42,964

Waiver+ 0 to 21 years

$35,095

Waiver+ 22+ years not family home

$59,107

Waiver+ 0 to 21 years not family home

$93,003

Waiver+ 22+ years family home

$25,502

Waiver+ 0 to 21 years family home

$20,378

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Illinois

Illinois’s count of people on the IDD caseload but not receiving LTSS includes 2,012 people already selected for services but who have not started receiving them yet, 515 people who were ineligible for services (people in PRFs and other residential settings, people living out of state, people who are deceased, and people with no needs listed), and 2,961 people who qualify for waiver services but have not demonstrated a need yet. The count of people on Illinois’s waiting list includes 2,012 people already selected for services but not yet receiving them and 2,961 people who qualify for waiver services but have not demonstrated a need yet. Before FY 2019, Illinois's surveys included some people with primary diagnoses of mental health disorders who lived in PRFs. Beginning in FY 2019, Illinois will report only on people with IDD in PRFs.