RISP State Profiles FY 2023

FY 2023 Profile Overview

Profiles show longitudinal changes in residential settings for long-term supports and services (LTSS) recipients with IDD, Medicaid Waiver waiting lists, LTSS recipients and annual per person expenditures by funding authority, and characteristics of state IDD agency caseloads. State fiscal years are July 1 to June 30 unless otherwise specified in state notes.

Blank spaces or breaks in a trend line show years the RISP survey did not include the data element or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methods, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients.

State notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. See survey questions and operational definitions here.

Long-Term Supports and Services Recipients with IDD by Residence Type and Year

This chart shows the number of long-term supports and services (LTSS) recipients with intellectual and developmental disabilities (IDD) by type and size of settings by year. Setting size refers to the number of people with IDD sharing a home. Setting type unknown is shown when states could not report on all setting types or could not tell the difference between people living in their own homes and those living with family members. Click on the button at the top right to see the numbers behind the chart.

• Family homes are residences shared by a person with IDD and their related family members.
• Own homes are homes owned or rented by one or more adults with IDD.
• Host or foster family homes are homes owned or rented by an individual or family that provide supportive services to one or more people with IDD.
• Group settings are residences owned, rented, or managed by the organization or agency that provides services to people living in the home.

Medicaid Recipients by Funding Authority 1982 through 2023

This chart shows changes in the number of people getting LTSS funded by different Medicaid authorities, and the number of people with IDD living with family members or in their own homes who were waiting for but not yet receiving Medicaid Waiver-funded services. The lines begin either when the state began offering that service or when RISP began tracking that data point. Only Texas reports on recipients of both 1915(i) and (k) services. While unlikely, if anyone receives both of these services, they are likely counted twice. Click on the button at the top right to see the numbers behind the chart.

Average Annual Per Person Spending by Age and Funding Authority for FY 2023

This chart shows average annual per person LTSS expenditures by funding authority for the specified fiscal year. Funding authorities include Medicaid ICF/IID, Medicaid Home and Community-Based Services (HCBS) Waiver, Medicaid State Plan, and state or local funding authorities. Click on the button at the top right to see the numbers behind the chart.

Demographic Characteristics of People Known to or Served by State IDD Agencies

This table shows characteristics of people on state IDD agency caseloads by fiscal year. RISP defines the caseload as all people known by the IDD agency to be eligible for services, whether they receive services or not. People on the caseload but not receiving LTSS can include people waiting for LTSS, people getting only case management services, and people who declined LTSS. This table also shows the percent of people on the caseload who were 21 years or younger and the number of adults (aged 22 and older) who died per 1,000 people on the caseload. It also lists the total number of people living in state IDD facilities housing 16 or more people.

Race and Ethnicity of People Known to or Served by State IDD Agencies

These graphs show the percentage of people on IDD agency caseloads in each race and ethnicity category for the specified fiscal year. RISP began tracking race and ethnicity data in FY 2022. Click on the button at the top right to see the numbers behind the chart.

State Notes for South Dakota

South Dakota did not complete the FY 2021 RISP survey. Alternate data for ICF/IID and nursing home residents are from AHCA (2021a, 2021b, 2021c, 2023a, 2023b, 2023c).

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu