RISP State Profiles FY 2020

New York

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

0

51,649

1,245

4,658

7,444

17,988

4,153

87,137

1999

0

60,437

1,280

4,483

8,008

18,007

3,818

96,033

2000

0

63,343

1,514

4,287

8,875

18,238

3,693

99,950

2001

0

77,983

6,997

4,000

9,817

18,243

3,601

120,641

2002

0

82,818

7,777

3,820

10,625

18,776

3,436

127,252

2003

0

81,456

7,729

3,757

11,112

18,823

3,471

126,348

2004

0

78,056

7,711

3,583

11,535

18,931

3,443

123,259

2005

0

79,476

7,690

3,322

12,003

19,039

3,348

124,905

2006

0

78,939

7,799

3,001

12,433

18,791

3,209

124,172

2007

0

78,804

7,771

2,875

13,215

18,831

3,185

124,681

2008

0

78,342

7,651

2,704

13,788

18,665

3,132

124,282

2009

0

78,553

7,861

2,598

14,308

18,753

3,048

125,121

2010

7,519

76,814

7,911

2,471

12,415

13,557

2,941

123,628

2011

7,562

76,161

7,914

2,406

12,628

13,468

2,797

122,936

2012

9,319

78,744

9,109

2,307

12,762

13,687

2,623

128,551

2013

1,021

81,178

9,481

2,178

15,150

18,533

1,408

128,949

2014

462

80,686

10,350

2,059

15,457

18,588

1,615

129,217

2015

83,052

10,792

1,940

15,682

18,462

1,013

131,914

2016

153

86,722

11,233

1,820

15,858

18,463

1,389

135,638

2017

30

89,066

11,734

1,692

16,731

17,882

1,212

138,347

2018

570

89,066

11,795

1,584

17,033

17,619

1,195

138,862

2019

0

75,695

12,023

1,495

17,381

17,213

1,150

124,957

2020

0

75,695

12,230

1,378

17,593

16,516

1,015

124,427

Medicaid Recipients by Funding Authority 1982 through 2020

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

1915 (i) or (k)

Other State Plan HCBS

1982

15,577

0

1983

15,958

0

1984

16,338

0

1985

16,719

0

1986

17,099

0

1987

17,567

0

1988

17,671

0

1989

17,774

0

1990

17,793

0

1991

17,812

0

1992

18,497

379

1993

21,850

3,398

1994

16,083

18,877

1995

12,386

23,199

1996

11,846

27,272

1997

11,472

29,019

1998

11,083

30,610

1999

10,230

33,699

2000

10,109

36,100

2001

9,923

40,165

2002

9,815

48,165

2003

9,467

48,921

2004

9,220

51,427

2005

8,558

51,486

2006

8,124

54,251

2007

7,995

56,401

2008

7,752

58,560

2009

7,664

62,195

2010

7,495

66,179

2011

7,432

69,136

2012

7,288

77,047

2013

7,127

79,491

2014

6,782

80,574

2015

6,502

83,739

2016

5,555

77,955

2017

4,895

82,656

0

108,134

2018

4,540

85,055

0

110,579

2019

4,170

87,073

0

114,101

2020

3,838

90,816

0

115,684

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2020

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$209,534

Waiver+ (all)

$75,750

Waiver+ 22+ years

$92,391

Waiver+ 0 to 21 years

$22,452

Waiver+ 22+ years not family home

$140,485

Waiver+ 0 to 21 years not family home

$86,932

Waiver+ 22+ years family home

$35,245

Waiver+ 0 to 21 years family home

$19,665

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2020 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2020 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2020

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for New York

1. Prior to FY 2018, the Office for People with Developmental Disabilities (OPWDD) used enrollment data to determine LTSS recipients in New York state. Starting in FY 2019, OPWDD transitioned to service utilization data, a more precise representation of the population supported by OPWDD. OPWDD does not have a waitlist for Medicaid Waiver Services. However, 5,355 people have expressed interest in OPWDD supported housing as of 06/30/2020. These individuals may or may not currently live in a family home or their own home setting.

2. Prior to 2020, the RISP survey asked only about State Plan 1915(i) and (k). New York was instructed to report the use of all state plan funding authorities in the 1915(i) and (k) category until 2020. In 2020, questions about recipients and expenditures for Targeted Case Management and Other State Plan LTSS were added to the survey. These changes are reflected in New York’s state profile.