RISP State Profiles FY 2019

Massachusetts

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

26

12,500

614

716

5,698

1,362

1,435

22,351

1999

700

14,500

1,022

964

5,191

1,108

1,374

24,859

2000

0

16,700

1,912

1,133

5,589

740

1,293

27,367

2001

0

19,452

1,915

1,133

6,003

775

1,236

30,514

2002

0

20,272

3,219

1,053

5,693

874

1,150

32,261

2003

0

20,106

1,568

1,556

5,590

873

1,181

30,874

2004

0

20,436

1,710

1,000

6,210

874

1,144

31,374

2005

0

19,665

1,308

934

7,059

885

1,092

30,943

2006

0

19,562

2,058

951

6,257

1,140

1,037

31,005

2007

0

20,111

2,058

958

6,296

1,156

978

31,557

2008

0

21,220

2,086

1,541

6,344

1,134

929

33,254

2009

0

19,916

2,114

1,569

6,471

1,188

893

32,151

2010

1,095

19,916

2,114

1,569

5,913

678

759

32,044

2011

1,637

19,458

2,405

2,433

6,915

0

690

33,022

2012

2,160

19,000

2,405

2,433

6,915

537

580

34,000

2013

0

19,000

2,696

3,296

8,865

652

516

35,025

2014

0

19,000

2,696

3,296

8,863

652

497

35,006

2015

10,893

6,948

2,551

2,074

433

22,899

2016

10,117

8,294

2,593

1,058

22,062

2017

9,968

7,046

2,702

1,029

0

0

396

21,141

2018

12,211

9,420

2,677

959

10,123

0

385

35,775

2019

15,363

9,998

2,747

880

10,225

0

342

39,555

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

4,041

0

1983

3,965

0

1984

3,889

0

1985

3,813

235

1986

3,737

525

1987

3,698

593

1988

3,623

593

1989

3,548

1,210

1990

3,410

1,539

1991

3,272

1,700

1992

3,304

3,288

1993

3,520

3,288

1994

2,119

5,130

1995

1,990

7,800

1996

1,795

8,027

2,170

1997

1,598

8,027

2,583

1998

1,435

10,317

2,583

1999

1,346

10,678

2,800

2000

1,266

10,375

2,227

2001

1,210

11,196

1,869

2002

1,125

11,315

1,537

2003

1,136

11,764

1,139

2004

1,116

11,388

772

2005

1,049

11,126

372

2006

1,012

11,460

0

2007

952

11,962

0

2008

901

11,381

0

2009

866

11,861

0

2010

759

11,861

0

2011

677

11,924

2012

594

11,987

2013

516

12,368

0

2014

499

13,361

0

2015

433

13,798

2016

409

14,274

0

0

2017

396

15,354

0

0

2018

385

16,381

0

0

2019

342

17,046

0

0

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$289,681

Waiver+ (all)

$91,294

Waiver+ 22+ years

$92,557

Waiver+ 0 to 21 years

$18,309

Waiver+ 22+ years not family home

$95,737

Waiver+ 22+ years family home

$95,737

Waiver+ 0 to 21 years family home

$19,273

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Massachusetts

The number of LTSS recipients ages 21 and younger living with a family member have not been reported since 2015. People living in host/foster settings before 2019 were counted as living in a family home. When reporting on people living in ICF/IIDs and their associated expenditures, Massachusetts included 11 people temporarily admitted for crisis stabilization. Settings coded as “other” include nursing homes, housing under Massachusetts’s Department of Mental Health, jails, prisons, and private pay settings. People reported as living in “unknown” settings includes children receiving LTSS as Massachusetts’s data system does report on residence type for children. Nursing home data are from AHCA (2019c).