RISP State Profiles FY 2019

Rhode Island

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

0

1,999

99

67

667

310

0

3,338

1999

504

609

530

66

1,037

187

25

2,958

2000

0

693

577

57

1,070

180

0

2,577

2001

0

700

607

65

1,094

170

0

2,636

2002

8

745

658

72

1,050

159

22

2,714

2003

124

714

670

63

1,064

173

22

2,830

2004

41

704

751

63

1,122

124

68

2,873

2005

165

696

757

65

1,148

177

23

3,031

2006

358

740

619

63

1,157

154

22

3,113

2007

199

839

681

84

1,179

162

23

3,167

2008

161

875

696

100

1,220

182

23

3,257

2009

181

895

742

136

1,224

114

21

3,313

2010

472

879

680

166

990

120

25

3,316

2011

3,337

3,337

2012

21

1,380

676

183

925

152

21

3,358

2013

1,760

466

229

1,281

210

4,000

2014

25

1,472

474

247

1,225

206

0

3,649

2015

0

1,502

488

267

1,124

253

25

3,666

2016

3

1,476

480

312

1,122

188

25

3,603

2017

0

1,560

510

346

1,101

153

26

3,696

2018

0

1,636

517

369

1,104

122

27

3,775

2019

0

1,715

522

383

1,012

153

30

3,815

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

881

0

1983

888

0

1984

894

11

1985

901

25

1986

907

117

1987

1,093

136

1988

1,025

250

1989

956

449

1990

861

277

1991

766

793

1992

602

993

1993

457

1,192

1994

353

1,333

1995

304

1,304

1996

225

1,914

100

1997

21

2,178

0

1998

0

2,296

0

1999

43

2,393

2000

18

2,471

0

2001

18

2,567

0

2002

40

2,674

0

2003

40

2,790

0

2004

39

2,834

0

2005

40

2,991

0

2006

40

3,073

0

2007

41

3,126

0

2008

40

3,217

0

2009

38

3,275

0

2010

41

3,275

0

2011

41

3,275

0

2012

42

3,316

0

2013

42

3,429

0

2014

3,541

0

2015

3,654

362

2016

3,638

0

0

2017

34

4,354

0

0

2018

37

3,738

0

0

2019

40

3,961

0

0

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$299,175

Waiver+ (all)

$65,172

Waiver+ 22+ years

$65,237

Waiver+ 0 to 21 years

$13,622

Waiver+ 22+ years not family home

$91,359

Waiver+ 0 to 21 years not family home

$26,998

Waiver+ 22+ years family home

$30,211

Waiver+ 0 to 21 years family home

$4,705

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Rhode Island

Rhode Island’s DD agency does not utilize a waiting list. ICF/IID data come from AHCA (2019a) and Murray (2021).