RISP State Profiles FY 2020

Year	Size/Type Unknown	Family Home	Own Home	Host/Foster Family	Group 1-6	Group 7-15	Group 16+	LTSS Recipients
1998	0	4,329	290	145	3,473	361	660	9,258
1999	0	4,329	290	175	3,594	356	664	9,408
2000	0	4,329	290	176	3,678	385	599	9,457
2001	0	1,924	150	190	3,729	388	552	6,933
2002	0	2,217	1,337	294	4,557	442	859	9,706
2003	0	2,128	1,139	428	5,023	460	499	9,677
2004	0	2,316	1,492	265	4,625	390	455	9,543
2005	0	2,139	1,509	251	4,482	313	392	9,086
2006	0	1,960	1,582	215	4,576	297	365	8,995
2007	878	2,369	1,728	216	4,844	259	336	10,630
2008	1,345	2,390	1,700	214	4,925	257	279	11,110
2009	1,583	2,270	1,725	215	5,098	271	129	11,291
2010	1,536	2,228	1,747	216	5,173	247	144	11,291
2011	1,625	2,149	1,777	212	5,191	259	142	11,355
2012	1,813	2,215	2,014	208	5,417	236	54	11,957
2013	0	2,215	2,195	213	7,789	219	277	12,908
2014	0	2,198	2,368	210	7,841	240	185	13,042
2015	13,429	2,215	2,542	212	5,751	246	131	24,526
2016	11,353	1,728	2,677	213	5,860	206	122	22,159
2017	9,483	1,728			5,909	189	92	17,401
2018	9,582				6,059	186	95	15,922
2019	9,910				6,141	141	93	16,285
2020	9,888				6,206	112	93	16,299

Year	ICF/IID Residents	Waiver+ Recipients	Waiting for Medicaid Waivers	1915 (i) or (k)	Other State Plan HCBS
1982	1,851	0
1983	1,942	0
1984	2,034	28
1985	2,125	356
1986	2,216	464
1987	1,429	685
1988	1,402	716
1989	1,374	813
1990	1,227	858
1991	1,079	1,082
1992	954	1,972
1993	894	2,437
1994	822	2,787
1995	775	2,898
1996	652	3,306
1997	624	3,392
1998	593	3,353
1999	562	3,660	2,830
2000	525	4,959	3,349
2001	482	6,013	3,804
2002	502	6,768	5,147
2003	396	7,593	6,875
2004	391	8,753	7,666
2005	367	9,438	7,710
2006	365	9,971	8,403
2007	336	10,294	9,670
2008	279	10,831	10,741
2009	129	11,162	18,698
2010	153	11,202	2,770
2011	152	11,805	3,318
2012	54	12,489	4,065
2013		8,749	5,276
2014	143	10,970	5,660
2015		13,935	5,547
2016		14,424	5,441
2017	92	15,283	5,812
2018	95	15,004	5,656	4,760
2019	93	15,474	5,303
2020	93	15,693	5,664

Medicaid Authority	Average Spending Per Person
ICF/IID (all)	$167,651
Waiver+ (all)	$68,030
Waiver+ 22+ years	$68,716
Waiver+ 0 to 21 years	$37,257

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2020 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2020 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2020

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Maryland

The number of LTSS recipients reported FY 2015-2017 included people receiving only service coordination. People reported in unknown settings includes people living in their own or family homes as Maryland’s data system does not distinguish between these groups. People in “non-state other” settings receive Community Coordination Services, Behavior Support Services (BSS), Residential, Individual Family Care (IFC), or self-directed supports. Before 2010, Maryland’s reported number of people on the waitlist included those deferring services until later and those already receiving waiver services. Since 2010, their reported waitlist only includes those waiting for waiver services and not receiving other waiver services. The number of people served in FY 2020 increased because people receiving services through the state's 1915(i) and (k) programs were included and because Maryland added Community and Family Supports programs for people with IDD. Maryland has three state-run facilities with 16 or more people. One of those, the Secure Evaluation and Therapeutic Treatment Program (SETT Unit), was not described in this report. A description of Maryland’s facilities can be found online (https://dda.health.maryland.gov/Pages/Facilities.aspx). Alternate data for Waiver and ICF/IID expenditures are from Mathematica (Murray et al, 2023). Alternate data for ICF/IID and nursing home residents are from AHCA (2020a, 2020b, & 2020c).