RISP State Profiles FY 2020

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2020 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2020 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number of people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2020

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Maryland

The number of LTSS recipients reported FY 2015-2017 included people receiving only service coordination. People reported in unknown settings includes people living in their own or family homes as Maryland’s data system does not distinguish between these groups. People in “non-state other” settings receive Community Coordination Services, Behavior Support Services (BSS), Residential, Individual Family Care (IFC), or self-directed supports. Before 2010, Maryland’s reported number of people on the waitlist included those deferring services until later and those already receiving waiver services. Since 2010, their reported waitlist only includes those waiting for waiver services and not receiving other waiver services. The number of people served in FY 2020 increased because people receiving services through the state’s 1915(i) and (k) programs were included and because Maryland added Community and Family Supports programs for people with IDD. Maryland has three state-run facilities with sixteen or more people. One of those, the Secure Evaluation and Therapeutic Treatment Program (SETT Unit), was not described in this report. A description of Maryland’s facilities can be found online (https://dda.health.maryland.gov/Pages/Facilities.aspx). Alternate data for Waiver and ICF/IID expenditures are from Mathematica (Murray et al, 2023). Alternate data for ICF/IID and nursing home residents are from AHCA (2020a, 2020b, & 2020c).