RISP State Profiles FY 2019

California

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

47

97,962

12,629

111

21,124

2,420

7,600

141,893

1999

1,126

104,319

13,485

966

21,465

2,520

7,360

151,241

2000

0

111,311

14,318

3,900

39,757

2,433

7,087

178,806

2001

0

119,042

15,014

3,893

21,701

2,344

6,892

168,886

2002

0

127,622

15,614

3,668

22,771

1,775

6,678

178,128

2003

0

134,476

16,267

4,029

22,506

1,691

6,407

185,376

2004

0

141,583

16,784

4,101

23,662

1,613

6,281

194,024

2005

149,386

17,671

4,041

23,994

1,487

5,820

202,261

2006

153,243

18,520

3,981

24,142

1,408

5,353

206,621

2007

127,186

15,469

3,957

24,377

1,343

5,065

171,873

2008

135,704

16,505

3,933

24,731

1,293

4,724

183,384

2009

198

137,942

20,856

3,646

25,163

1,267

4,306

193,378

2010

200

133,809

21,627

3,359

25,329

1,229

3,993

189,546

2011

0

136,147

22,267

3,729

25,620

1,215

3,691

192,669

2012

1,157

140,887

23,097

3,892

25,593

1,152

3,390

199,168

2013

0

145,176

23,763

4,160

25,618

1,181

3,192

203,090

2014

54

152,592

24,510

4,472

25,487

1,176

2,660

210,951

2015

235

162,156

25,097

4,968

25,338

1,129

2,532

221,455

2016

93

172,850

25,569

5,335

25,079

1,099

2,364

232,389

2017

0

181,533

25,968

5,825

24,650

1,005

2,179

241,160

2018

0

192,592

26,265

6,224

24,390

986

1,918

252,375

2019

6,804

230,744

26,670

3,446

21,830

1,277

979

291,750

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

10,374

0

1983

10,135

433

1984

9,895

619

1985

9,656

2,500

1986

9,416

2,962

1987

10,871

3,027

1988

10,925

2,493

1989

10,978

3,355

1990

11,177

3,628

1991

11,376

3,360

1992

10,923

3,360

1993

11,025

11,085

1994

12,781

13,266

1995

12,125

19,101

1996

10,233

29,133

1997

10,681

37,478

0

1998

10,835

33,202

0

1999

11,265

30,386

0

2000

11,158

28,233

0

2001

10,860

29,044

0

2002

10,839

44,205

0

2003

9,813

53,775

0

2004

10,585

57,533

0

2005

10,369

61,587

0

2006

9,864

69,782

0

2007

9,598

73,024

0

9,598

2008

9,379

75,867

0

2009

9,293

80,862

0

2010

9,080

85,294

0

9,080

2011

8,907

92,076

0

2012

8,726

97,868

0

2013

8,468

103,008

0

2014

8,230

109,048

0

2015

7,989

115,365

0

2016

7,824

120,084

0

2017

7,649

124,081

0

54,447

2018

7,101

117,014

0

55,795

2019

7,130

131,111

0

57,755

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$75,079

State Plan HCBS

$9,928

Waiver+ (all)

$29,077

Waiver+ 22+ years

$44,110

Waiver+ 0 to 21 years

$9,361

Waiver+ 22+ years not family home

$72,736

Waiver+ 0 to 21 years not family home

$63,026

Waiver+ 22+ years family home

$20,932

Waiver+ 0 to 21 years family home

$7,710

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for California