RISP State Profiles FY 2020

Year	Size/Type Unknown	Family Home	Own Home	Host/Foster Family	Group 1-6	Group 7-15	Group 16+	LTSS Recipients
1998	4,013			20		1,864	2,928	10,551
1999	6,552			7	1,834	453	1,935	10,781
2000	0	2,166	2,487	6	1,126	725	4,495	11,011
2001	0	2,181	2,564	6	1,366	572	2,364	9,053
2002	0	2,432	2,858	9	763	823	1,719	8,604
2003	0	2,706	3,154	16	729	812	1,826	9,243
2004	0	3,027	3,553	5	611	1,101	1,756	10,053
2005	0	4,145	4,866	6		1,060	1,724	12,495
2006	10	4,622	5,007	7		1,020	1,828	13,210
2007	0	4,949	5,341	7		991	1,645	13,646
2008	0	5,156	5,585	7	391	1,070	1,851	14,060
2009	0	5,320	5,764	7	371	1,055	1,797	14,314
2010	0	5,411	5,863	3	380	798	2,405	14,860
2011		5,513	5,972	3	388	1,032	1,688	14,366
2012	12,066			4	417	920	1,431	14,838
2013	9,293			5	511	908	1,380	12,097
2014	9,999			2	532	872	1,304	12,709
2015	9,265			2	523	782	1,139	11,711
2016	9,303			2	475	753	1,090	11,623
2017	12,889			139	512	733	1,063	15,336
2018	0	7,860	7,185	0	1,513	815	1,149	18,522
2019	15,338			0	1,401	701	1,194	18,634
2020	736	10,133	8,057	181	4,267	464	654	24,492

Year	ICF/IID Residents	Waiver+ Recipients	Waiting for Medicaid Waivers	1915 (i) or (k)	Other State Plan HCBS
1982	1,673	0
1983	1,759	0
1984	1,845	0
1985	1,930	0
1986	2,016	0
1987	1,840	4
1988	1,829	12
1989	1,818	14
1990	1,975	5
1991	2,132	19
1992	2,088	137
1993	1,890	170
1994	1,818	879
1995	1,909	1,669
1996	2,182	2,575
1997	2,268	3,932
1998	2,154	4,058
1999	2,250	4,118
2000	3,028	4,603
2001	3,016	5,503
2002	2,157	6,228
2003	2,243	7,229
2004	2,212	8,002
2005	2,182	10,933	79
2006	2,318	11,823	86
2007	2,123	12,751	77
2008	2,134	13,205	99
2009	2,056	13,983	27
2010	2,088	14,174	94
2011	2,047	14,300	395
2012	2,002	11,359	0
2013	2,005	14,638	0
2014	2,176	14,725	0
2015	2,133	14,532	0
2016	2,011	14,091
2017	1,765	12,716		1,965
2018	1,441	13,214		620
2019	1,429	13,652		667
2020	1,430	23,798		1,452	724

Medicaid Authority	Average Spending Per Person
ICF/IID (all)	$92,136
State Plan HCBS	$4,020
Waiver+ (all)	$28,412
Waiver+ 22+ years	$48,149
Waiver+ 0 to 21 years	$8,766

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2020 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2020 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2020

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Iowa

Variation between previous reporting years and FY 2020 is due to a change in reporting methods that include a more detailed data source. The number of non-state group home settings by size is based on the number of provider agencies and may, therefore, underestimate the total number of homes. PRF data on short-term or crisis admissions and per diem are from Iowa’s PRF surveys.