RISP State Profiles FY 2019

North Carolina

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

15

3,086

90

180

4,108

484

2,608

10,571

1999

3,180

3,631

532

347

3,973

349

2,535

14,547

2000

0

7,193

594

358

7,238

596

2,543

18,522

2001

0

10,612

1,343

809

5,908

1,265

2,532

22,469

2002

0

15,588

1,986

977

5,236

1,286

2,703

27,776

2003

0

16,820

2,135

1,043

5,679

981

2,628

29,286

2004

0

16,738

2,222

920

5,317

952

2,450

28,599

2005

1,340

15,058

2,292

955

5,815

1,062

2,468

28,990

2006

16,161

2,144

990

5,750

1,055

2,383

28,219

2007

14,869

1,870

1,024

5,815

1,087

2,432

26,703

2008

14,782

2,238

1,059

5,098

528

2,201

25,106

2009

14,694

2,606

1,094

4,730

178

2,141

24,707

2010

1,614

13,389

1,486

1,128

2,049

346

2,082

22,094

2011

7,221

13,577

1,522

384

1,707

24,411

2012

7,252

13,765

3,280

392

2,038

26,727

2013

8,222

12,242

1,360

21,824

2014

13,661

10,720

24,381

2015

19,778

9,197

28,975

2016

17,870

7,674

1,591

27,135

2017

6,200

208

2,204

1,446

102

1,663

24,401

2018

4,976

274

2,307

1,819

111

1,494

29,729

2019

6,495

19,784

369

2,362

2,885

521

1,840

34,256

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

2,762

0

1983

2,848

0

1984

2,933

17

1985

3,019

120

1986

3,104

331

1987

3,445

328

1988

3,309

405

1989

3,173

553

1990

3,776

731

1991

4,378

780

1992

4,502

939

1993

4,662

1,190

1994

4,732

1,318

1995

4,595

1,818

1996

4,593

3,098

1997

4,777

3,726

2,450

1998

4,705

3,986

2,450

1999

4,616

4,974

2,303

2000

4,520

5,364

2,074

2001

4,493

6,141

2002

4,645

6,013

1,084

2003

4,500

5,692

1,041

2004

3,875

6,011

2005

4,306

6,753

2006

4,091

7,831

1,630

2007

4,124

9,309

1,355

2008

4,176

9,700

1,355

2009

3,854

10,333

2010

3,946

11,094

397

2011

3,613

12,838

2012

3,930

12,800

8,425

2013

3,273

12,906

9,900

2014

12,881

9,130

2015

13,666

9,569

2016

3,160

16,892

10,687

2017

4,406

21,786

9,402

0

2018

3,979

33,241

10,459

0

2019

4,007

29,840

10,344

0

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$138,182

Waiver+ (all)

$42,478

Waiver+ 22+ years

$59,483

Waiver+ 0 to 21 years

$15,595

Waiver+ 22+ years not family home

$67,059

Waiver+ 0 to 21 years not family home

$18,086

Waiver+ 22+ years family home

$28,565

Waiver+ 0 to 21 years family home

$10,693

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for North Carolina

In FY 2019, much of North Carolina’s nonstate-operated LTSS for people with IDD were managed by seven local management entity/managed care organizations (LME/MCO). Not all LME/MCOs provided complete data for all data points requested in RISP, so data are often inconsistent year-to-year. In FY 2018 and 2019, the following data were reported on by the corresponding number of LME/MCOs:

  • ICF/IID: 2/7 (FY 2018: 3/7)
  • Group homes: 3/7 (FY 2018: 3/7)
  • Host/foster family homes: 4/7 (FY 2018: 3/7)
  • Own home: 6/7 (FY 2018: 2/7)
  • Other homes: 5/7 (FY 2018: 5/7)

Furthermore, data on residence size for nonstate settings is provided by LME/MCO that may not have access to accurate information on facility size. As a result, the reported number of facilities may be an undercount. A change in the number of people reported in state-operated settings for 16+ residents under “Other” funding authorities is due to a change in coding the more properly associated people in ICF-funded residences. People in Black Mountain and O’Berry Centers were included in counts of people in state-operated facilities beginning in FY 2018.