RISP State Profiles FY 2019

Maine

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

0

1,800

400

680

1,206

314

80

4,480

1999

162

1,800

522

1,035

1,427

459

99

5,504

2000

0

2,000

1,000

1,850

1,269

330

78

6,527

2001

0

184

346

419

1,566

219

77

2,811

2002

0

427

450

747

1,598

235

43

3,500

2003

13

657

471

677

1,659

284

42

3,803

2004

0

552

475

668

1,825

203

86

3,809

2005

0

599

568

728

1,935

202

49

4,081

2006

468

404

566

774

1,431

159

38

3,840

2007

0

311

413

743

1,919

210

20

3,616

2008

212

529

443

609

1,999

192

38

4,022

2009

0

464

375

609

1,712

214

0

3,374

2010

0

387

303

418

1,858

65

32

3,063

2011

0

264

285

360

2,014

110

33

3,066

2012

52

1,563

541

793

2,079

116

117

5,261

2013

98

1,575

400

754

1,911

113

58

5,113

2014

182

1,342

310

714

1,759

114

58

4,479

2015

305

136

384

524

1,722

124

32

3,143

2016

411

629

684

1,706

124

32

3,586

2017

3,048

729

729

1,797

129

16

6,448

2018

1,566

822

991

1,791

135

48

5,353

2019

2,060

2,419

2,978

1,421

65

8,943

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

630

0

1983

654

0

1984

677

75

1985

701

165

1986

724

353

1987

677

400

1988

673

450

1989

668

453

1990

662

454

1991

656

509

1992

630

509

1993

630

509

1994

542

742

1995

487

742

1996

445

1,000

1997

548

1,078

1998

309

1,345

1999

304

1,610

2000

298

1,834

494

2001

275

2,052

477

2002

246

2,440

504

2003

269

2,458

120

2004

225

2,549

120

2005

236

2,604

105

2006

211

2,666

107

2007

222

2,781

105

2008

210

2,867

69

2009

183

4,212

73

2010

97

4,288

337

2011

145

4,156

930

2012

189

4,101

85

2013

205

4,208

725

2014

171

4,308

957

2015

167

4,450

1,153

0

2016

162

4,881

977

0

2017

159

4,948

1,141

0

2018

187

5,229

1,665

0

2019

191

5,631

1,856

0

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$219,337

Waiver+ (all)

$80,040

Waiver+ 22+ years

$82,348

Waiver+ 0 to 21 years

$39,310

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Maine

All data reported from Maine encompasses the entire fiscal year for FY2019. FY2019 reports only individuals with ID/DD served by the state IDD agency, which exclusively serves people ages 18 and over. This accounts for the significant reduction in the number of people ages 21 and under in reporting for FY2019. Four state-operated IDD facilities where stays are limited to 90 days or less (Crisis Homes) are reported as “Other” state-operated settings.