RISP State Profiles FY 2019

Missouri

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

3,009

4,871

2,199

100

898

1,258

1,773

14,108

1999

3,441

4,871

2,245

97

1,042

1,196

1,641

14,533

2000

0

8,582

2,270

85

1,041

1,231

1,749

14,958

2001

0

11,092

2,343

85

1,041

1,171

1,678

17,410

2002

0

11,603

2,350

76

1,074

1,212

1,565

17,880

2003

122

9,171

2,252

62

1,341

1,200

1,489

15,637

2004

110

6,440

2,457

54

1,144

1,152

1,425

12,782

2005

0

7,644

2,391

41

822

1,224

1,351

13,964

2006

84

7,463

2,542

30

1,333

1,205

1,233

13,890

2007

620

7,412

2,728

30

1,367

1,182

1,214

14,553

2008

1,072

7,294

2,824

23

1,492

1,131

1,195

15,031

2009

64

7,397

2,886

19

1,503

1,048

991

13,908

2010

151

6,199

3,230

19

1,547

976

766

12,888

2011

184

7,273

3,497

19

1,445

1,200

704

14,322

2012

1,632

8,089

3,984

20

1,413

1,108

623

16,869

2013

31

8,955

4,131

208

1,552

1,126

575

16,578

2014

0

9,599

4,170

375

1,463

1,072

546

17,225

2015

0

10,136

4,363

397

1,363

1,080

469

17,808

2016

0

10,922

4,558

414

1,450

940

420

18,704

2017

0

11,278

4,748

460

1,333

901

400

19,120

2018

0

12,115

4,956

489

1,210

872

373

20,015

2019

0

12,858

4,982

522

1,142

803

363

20,670

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

1,878

0

1983

1,931

0

1984

1,983

0

1985

2,036

0

1986

2,088

0

1987

1,868

0

1988

1,863

0

1989

1,858

338

1990

1,933

989

1991

2,008

1,452

1992

1,751

2,241

1993

1,709

2,622

1994

1,709

3,057

1995

1,678

3,511

1996

1,643

5,685

694

1997

1,466

6,282

553

1998

1,501

7,238

553

1999

1,488

7,926

564

2000

1,371

8,238

574

2001

1,341

8,419

86

2002

1,398

8,143

94

2003

1,310

7,861

626

2004

1,286

8,219

2005

1,185

8,268

491

2006

1,054

8,183

442

2007

1,020

8,396

507

2008

965

8,729

469

2009

843

8,766

531

2010

731

9,105

206

2011

660

10,215

256

2012

590

11,041

200

2013

569

12,147

1,113

2014

506

12,242

898

2015

473

13,133

356

0

2016

436

13,722

262

0

2017

421

14,152

247

0

2018

396

14,723

0

0

2019

383

15,405

0

0

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$214,755

Waiver+ (all)

$67,136

Waiver+ 22+ years

$75,299

Waiver+ 0 to 21 years

$29,603

Waiver+ 22+ years not family home

$114,717

Waiver+ 0 to 21 years not family home

$127,206

Waiver+ 22+ years family home

$24,441

Waiver+ 0 to 21 years family home

$14,467

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Missouri

Group home numbers are trending downward and will continue to do so as Missouri is no longer developing new group homes, and individuals are choosing the supported living service. Waiver expenditures for people ages birth to 21 years increased in FY 2019 in part due to more families choosing self-direction over residential services. Waiting lists for Waiver-funded supports in Missouri were eliminated in FY 2015. Beginning in FY 2015, all of the people reported to be waiting were actually moving through the assessment and provider selection process.