RISP State Profiles FY 2019

New Jersey

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

0

14,132

439

1,762

781

3,744

23,659

1999

204

15,331

460

1,797

2,981

820

3,531

25,124

2000

0

16,431

791

1,779

3,159

842

3,587

26,589

2001

553

17,891

811

1,723

3,337

834

3,507

28,656

2002

0

19,124

815

1,657

3,597

843

3,945

29,981

2003

593

20,150

812

1,599

3,909

837

3,243

31,143

2004

603

21,908

789

1,529

4,143

823

3,195

32,990

2005

0

23,095

782

1,432

4,360

782

3,783

34,233

2006

681

24,044

737

1,376

4,380

791

3,125

35,134

2007

728

25,470

768

1,272

4,517

860

3,069

36,684

2008

726

26,915

895

1,276

4,762

855

2,971

38,400

2009

0

26,838

927

1,276

4,535

1,834

4,817

40,227

2010

13,335

136

1,112

6,077

892

3,850

25,403

2011

12,205

112

1,032

5,535

1,002

3,734

23,767

2012

11,892

115

987

6,000

813

3,567

23,419

2013

13,297

126

907

6,425

945

3,504

24,980

2014

12,874

117

804

6,888

922

2,829

24,434

2015

11,647

92

728

7,112

842

2,395

22,816

2016

12,961

83

662

7,268

812

2,331

24,117

2017

0

13,922

79

600

7,550

752

2,180

25,083

2018

0

14,883

59

554

7,733

689

2,020

25,938

2019

0

13,925

52

436

7,534

513

1,938

24,398

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

4,366

0

1983

4,245

0

1984

4,124

1,317

1985

4,002

2,025

1986

3,881

1,993

1987

3,815

2,596

1988

3,819

2,873

1989

3,822

3,170

1990

3,820

3,270

1991

3,818

3,655

1992

3,942

3,971

1993

3,892

4,191

1994

3,975

4,729

1995

4,060

5,033

1996

4,091

5,242

3,944

1997

3,948

5,705

4,608

1998

3,744

6,199

4,608

1999

3,531

6,635

4,768

2000

3,487

6,894

5,012

2001

3,436

6,978

2,902

2002

3,370

7,486

2,450

2003

3,166

8,122

2,670

2004

3,124

8,455

3,009

2005

3,053

9,075

3,384

2006

3,020

9,611

3,694

2007

2,963

9,923

3,844

2008

2,878

10,048

4,649

2009

2,865

10,081

2010

2,694

10,083

2011

2,578

10,315

2012

2,426

11,297

2013

2,189

10,645

3,932

2014

1,835

10,700

3,765

2015

1,612

10,972

3,664

0

2016

1,477

10,922

3,201

0

2017

1,463

11,874

2,830

0

2018

1,385

15,636

997

0

2019

1,323

19,729

673

0

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$341,843

Waiver+ (all)

$71,886

Waiver+ 22+ years

$71,886

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for New Jersey

Most children in New Jersey (people ages 21 and under) with IDD who receive LTSS are served by the Department of Children and Families. Around 100 children with IDD remain on the caseload of the Division on Developmental Disabilities (DDD). The number of persons funded on Medicaid waivers and related expenditures experienced increases due to the New Jersey Supports Program. DDD began enrolling persons onto that program in FY 2016 which carried into subsequent FYs. Three people supported by DDD are housed in a specialized unit at one of its ICF/IIDs. This unit is used by the courts as an alternative to incarceration for individuals with IDD who have been convicted of crime(s). Associated costs for persons served there are not eligible for federal match. They are reported as residing an “Other” state-operated settings. Reported ICF/IID expenditures are only for state-run ICF/IIDs. Nursing home data are from AHCA (2019c).