RISP State Profiles FY 2019

United States

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

325,650

62,669

28,122

108,844

53,942

88,569

674,044

1999

355,192

65,006

31,884

114,546

52,863

82,166

701,083

2000

9,491

391,909

73,147

37,367

124,469

52,802

82,582

771,767

2001

40,382

451,677

80,242

40,688

91,750

54,349

77,180

833,965

2002

482,479

86,694

42,272

135,571

54,031

77,085

875,219

2003

5,435

500,004

90,597

45,759

135,569

54,325

70,596

902,285

2004

3,837

503,641

107,157

39,857

142,918

58,503

67,930

923,843

2005

200

533,048

100,943

35,386

156,610

52,888

67,066

946,141

2006

569,020

118,887

35,302

157,082

56,572

72,300

993,615

2007

0

552,559

116,279

36,972

173,483

52,253

58,620

990,166

2008

0

588,594

118,887

38,970

170,419

51,404

57,187

1,025,460

2009

418

599,152

121,670

40,967

158,621

58,235

59,604

1,038,667

2010

40

592,180

127,415

40,060

167,874

55,682

57,028

1,040,279

2011

631,436

126,998

44,457

175,943

58,059

55,140

1,092,033

2012

29,144

634,988

123,257

58,712

184,940

56,409

50,671

1,138,121

2013

0

631,258

127,582

57,150

190,568

55,778

50,206

1,112,542

2014

0

661,166

130,674

59,283

194,727

56,452

46,545

1,148,844

2015

0

698,566

137,010

61,715

216,350

54,136

41,374

1,209,151

2016

0

714,910

146,974

63,750

210,195

53,166

39,705

1,228,700

2017

77,625

731,943

150,098

66,144

168,178

46,546

36,736

1,233,900

2018

1,961

803,540

153,573

64,206

210,336

52,830

36,319

1,320,738

2019

2

849,104

153,079

64,869

221,545

52,815

34,209

1,375,623

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

140,752

1,381

1983

141,611

5,604

1984

142,471

17,972

1985

143,330

22,690

1986

144,189

17,180

1987

146,134

22,689

1988

146,641

28,689

1989

147,148

35,077

1990

146,903

39,838

1991

146,657

51,271

1992

146,260

62,429

1993

147,729

86,604

1994

142,118

122,075

1995

134,384

149,185

1996

129,449

190,230

87,187

1997

126,697

221,909

1998

124,248

239,021

1999

117,917

261,788

66,246

2000

116,441

291,255

71,922

2001

113,907

327,942

69,787

2002

110,572

373,946

59,818

2003

107,065

401,904

75,288

2004

104,526

422,395

88,841

2005

101,821

443,606

73,828

2006

98,544

479,196

84,523

2007

96,427

501,864

88,349

11,214

2008

93,164

529,052

114,916

2009

87,373

562,067

122,870

2010

87,560

592,070

115,059

9,265

2011

84,870

656,329

76,677

0

2012

85,384

688,410

79,102

0

2013

83,262

709,870

245,474

1,454

2014

80,567

740,032

209,523

1,424

2015

78,035

774,964

199,447

0

2016

74,614

807,462

193,828

20,308

2017

69,415

846,878

160,323

209,542

2018

70,260

878,842

210,781

216,431

2019

66,485

930,356

194,983

219,532

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$140,210

ICF/IID 0 to 21 years

$125,579

ICF/IID 22 years +

$139,468

Waiver (all settings and ages)

$48,458

Waiver 0 to 21 years (all settings)

$18,182

Waiver 22+ years (all settings)

$58,857

Waiver 0 to 21 years (family home)

$14,231

Waiver 0 to 21 years (other home)

$46,329

Waiver 22+ years (family home)

$26,852

Waiver 22+ years (other home)

$73,072

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for United States