FY 2017 RISP State Profiles

California

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

97,962

12,629

111

21,124

2,420

7,600

47

141,893

99

104,319

13,485

966

21,465

2,520

7,360

1,126

151,241

00

111,311

14,318

3,900

39,757

2,433

7,087

0

178,806

01

119,042

15,014

3,893

21,701

2,344

6,892

0

168,886

02

127,622

15,614

3,668

22,771

1,775

6,678

0

178,128

03

134,476

16,267

4,029

22,506

1,691

6,407

0

185,376

04

141,583

16,784

4,101

23,662

1,613

6,281

0

194,024

05

149,386

17,671

4,041

23,994

1,487

5,820

202,261

06

153,243

18,520

3,981

24,142

1,408

5,353

206,621

07

127,186

15,469

3,957

24,377

1,343

5,065

171,873

08

135,704

16,505

3,933

24,731

1,293

4,724

183,384

09

137,942

20,856

3,646

25,163

1,267

4,306

198

193,378

10

133,809

21,627

3,359

25,329

1,229

3,993

200

189,546

11

136,147

22,267

3,729

25,620

1,215

3,691

0

192,669

12

140,887

23,097

3,892

25,593

1,152

3,390

1,157

199,168

13

145,176

23,763

4,160

25,618

1,181

3,192

0

203,090

14

152,592

24,510

4,472

25,487

1,176

2,660

54

210,951

15

162,156

25,097

4,968

25,338

1,129

2,532

235

221,455

16

172,850

25,569

5,335

25,079

1,099

2,364

93

232,389

17

181,533

25,968

5,825

24,650

1,005

2,179

0

241,160

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

10,374

0

27,066

1983

10,135

433

27,433

1984

9,895

619

27,801

1985

9,656

2,500

28,168

1986

9,416

2,962

28,536

1987

10,871

3,027

28,903

1988

10,925

2,493

29,790

1989

10,978

3,355

30,677

1990

11,177

3,628

31,564

1991

11,376

3,360

32,451

1992

10,923

3,360

49,759

1993

11,025

11,085

67,066

1994

12,781

13,266

84,374

1995

12,125

19,101

101,681

1996

10,233

29,133

118,989

1997

10,681

37,478

0

122,712

1998

10,835

33,202

0

141,893

1999

11,265

30,386

0

151,241

2000

11,158

28,233

0

178,806

2001

10,860

29,044

0

168,886

2002

10,839

44,205

0

178,128

2003

9,813

53,775

0

185,376

2004

10,585

57,533

0

194,024

2005

10,369

61,587

0

202,261

2006

9,864

69,782

0

206,621

2007

9,598

73,024

0

171,873

2008

9,379

75,867

0

183,384

2009

9,293

80,862

0

193,378

2010

9,080

85,294

0

189,546

2011

8,907

92,076

0

192,669

2012

8,726

97,868

0

199,168

2013

8,468

103,008

0

203,090

231,836

2014

8,230

109,048

0

210,951

240,037

2015

7,989

115,365

0

221,455

249,643

2016

7,824

120,084

0

232,389

259,463

2017

7,602

124,081

0

241,160

269,937

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

91596.74

Waiver+ (all)

$27,272

Waiver+ 0 to 21 years family home

$7,865

Waiver+ 22+ years family home

$19,352

Waiver+ 0 to 21 years not family home

$63,541

Waiver+ 22+ years not family home

$67,086

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for California

California reported recipients by age in its large state operated IDD facilities in the following categories 22 to 31 years, 32 to 41 years, 42 to 51 years, 52 to 61 years, and more than 61 years.