RISP State Profiles FY 2020

Year	Size/Type Unknown	Family Home	Own Home	Host/Foster Family	Group 1-6	Group 7-15	Group 16+	LTSS Recipients
1998	0	5,190	715	686	217	469	381	7,658
1999	133	5,916	825	772	225	487	382	8,740
2000	0	6,713	931	1,009	252	481	436	9,822
2001	0	7,172	919	1,137	266	495	324	10,313
2002	0	8,288	988	918	255	535	227	11,211
2003	0	7,989	928	990	241	509	244	10,901
2004	41	8,971	1,359	1,083	220	466	230	12,370
2005	0	8,992	1,228	1,215	243	507	280	12,465
2006	0	10,816	1,248	1,290	238	491	421	14,504
2007	0	11,280	1,227	1,512	215	524	478	15,236
2008	0	12,080	1,321	1,594	169	507	483	16,154
2009	0	12,791	1,437	1,729	219	515	473	17,164
2010	0	12,791	1,437	1,729	219	515	461	17,152
2011
2012	489	1,182	942	1,694	2	147	139	4,595
2013	438	1,182	1,286	627	15	142	132	3,822
2014	3,006			614	5	125	134	3,884
2015	5,797		1,483	575	5	125	119	8,104
2016	4,656	1,554	1,206	559	1	121	117	8,214
2017	4,805	1,610	1,206	546	1	143	257	8,568
2018	7,545			552	0	99	141	8,680
2019	6,810	1,719		509	0	104	94	9,236
2020	4,363	1,827		1,827	0	80	111	8,208

Year	ICF/IID Residents	Waiver+ Recipients	Waiting for Medicaid Waivers	1915 (i) or (k)	Other State Plan HCBS
1982	482	0
1983	479	0
1984	476	18
1985	472	51
1986	469	25
1987	461	55
1988	491	201
1989	520	270
1990	528	346
1991	535	165
1992	519	225
1993	494	174
1994	527	333
1995	540	362
1996	538	415	100
1997	579	434	100
1998	560	441	100
1999	577	509	100
2000	592	801	0
2001	584	1,031	0
2002	576	1,139	0
2003	577	1,302	0
2004	571	1,501	0
2005	559	1,702	0
2006	542	1,813	0
2007	543	2,015	0
2008	535	2,233	0
2009	535	2,484	0
2010	524	2,933	0
2011	528	2,933	0
2012	485	2,660	0
2013	487	5,100	0
2014	469	6,598	0
2015	488	7,616	0
2016	488	7,726	0
2017		8,113	0
2018	444	8,234	0
2019	432	8,791	0
2020	91	7,809	0

Medicaid Authority	Average Spending Per Person
ICF/IID (all)	$97,385
Waiver+ (all)	$35,948
Waiver+ 22+ years	$55,084
Waiver+ 0 to 21 years	$13,447

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2020 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2020 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2020

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Idaho

Idaho provided data for about half of the FY 2020 survey. The number of people on the state IDD caseload did not include people living in an ICF/IIDs. Settings are reported by license or certification size. Some settings were not operating at capacity or had no residents on June 30, 2020. The significant decrease in expenditures for children on the Medicaid waiver is the result of several factors. First, in FY 2020, DDA terminated the Children’s waiver and implemented the Medicaid state-plan funded Children’s DD enhancement program. Children no longer must meet ICF/ID level of care to qualify for services. Medicaid waiver expenditures increased as any children aged out of children’s services and due to a settlement agreement that permits adult Waiver recipients to use their largest annual DD budget allocation since 2011 for services while DDA works to determine a court-approved budget allocation process. ICF/IID expenditures are reported only for a subtotal of recipients. State PRF per diem data are from Idaho’s PRF survey. Alternate data for Waiver and ICF/IID expenditures are from Mathematica (Murray et al, 2023). Alternate data for ICF/IID and nursing home residents are from AHCA (2020a, 2020b, & 2020c).