FY 2017 RISP State Profiles

Illinois

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

9,391

798

116

742

2,407

5,193

8,324

0

26,971

99

9,227

674

109

732

2,771

5,241

8,136

1,238

28,128

00

11,864

1,579

93

659

3,108

5,395

7,676

0

30,284

01

11,864

1,579

93

659

3,018

5,395

7,633

0

30,241

02

11,864

1,579

93

659

3,018

5,395

7,633

0

30,241

03

11,864

1,579

93

659

3,018

5,395

7,419

0

30,027

04

7,721

7,721

252

196

3,485

6,113

6,959

0

32,447

05

11,324

3,775

245

76

3,640

6,463

6,660

0

32,183

06

11,005

3,669

216

160

3,735

6,612

6,452

0

31,849

07

10,762

3,550

201

173

3,543

7,067

6,178

0

31,474

08

12,516

4,172

209

183

3,686

7,179

6,041

0

33,935

09

12,248

4,083

189

211

3,698

7,357

5,773

0

33,559

10

11,996

3,999

254

155

3,844

7,703

5,545

0

33,496

11

9,000

3,000

235

357

4,310

8,971

5,073

0

30,946

12

9,708

1,884

244

403

4,366

8,202

5,223

144

30,173

13

10,416

767

260

470

3,931

7,193

5,116

0

28,153

14

11,258

709

216

516

4,355

7,242

4,773

241

29,310

15

11,390

733

255

559

4,651

7,467

4,535

1

29,591

16

11,477

1,681

273

374

4,093

7,543

4,364

554

30,359

17

12,578

1,983

304

236

4,153

7,187

4,372

0

30,813

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

8,144

0

12,888

1983

8,346

0

12,879

1984

8,549

40

12,871

1985

8,751

543

12,862

1986

8,953

543

12,854

1987

10,346

664

12,845

1988

10,605

637

13,770

1989

10,864

680

14,695

1990

11,404

724

15,620

1991

11,943

1,338

16,545

1992

12,311

2,006

18,027

1993

12,160

2,850

19,509

1994

10,979

4,590

20,991

1995

10,935

3,761

22,473

1996

10,416

5,267

23,955

1997

10,500

5,400

26,068

1998

10,789

6,037

26,971

1999

10,678

6,500

28,128

2000

10,310

6,787

30,284

2001

10,267

6,787

30,241

2002

9,923

6,787

30,241

2003

10,053

9,785

30,027

2004

9,723

9,727

32,447

2005

9,592

10,457

32,183

2006

9,402

12,409

31,849

2007

9,213

12,800

31,474

2008

9,023

14,496

10,446

33,935

2009

8,525

15,302

12,289

33,559

2010

8,567

16,954

15,042

33,496

2011

8,460

18,108

14,905

30,946

2012

8,344

18,355

12,076

30,173

2013

7,852

20,300

22,999

28,153

50,859

2014

7,360

21,226

22,000

29,310

53,645

2015

6,788

22,141

17,566

29,591

54,771

2016

6,615

23,744

9,725

30,359

41,571

2017

6,653

22,810

10,778

30,813

41,599

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$88,201

Waiver+ (all)

$40,482

Waiver+ 0 to 21 years family home

$21,047

Waiver+ 22+ years family home

$24,202

Waiver+ 0 to 21 years not family home

$80,439

Waiver+ 22+ years not family home

$55,840

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Illinois

Prior to FY 2016, the number of people waiting for services included some people who were already receiving Medicaid Waiver-funded supports. Beginning in FY 2016, only people living with a family member or in their own home who requested Medicaid Waiver funded supports to begin within the next 12 months are counted. For age breakdowns in Section 4 on large state operated facilities, people 21 years old are reported with the 22 years or older group.