FY 2017 RISP State Profiles

Iowa

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

20

1,864

2,928

4,013

10,551

99

7

7

1,827

453

1,935

6,552

10,781

00

2,166

2,487

6

1,126

725

4,495

0

11,011

01

2,181

2,564

6

0

1,366

572

2,364

0

9,053

02

2,432

2,858

9

267

496

823

1,719

0

8,604

03

2,706

3,154

16

294

435

812

1,826

0

9,243

04

3,027

3,553

5

269

342

1,101

1,756

0

10,053

05

4,145

4,866

6

1,060

1,724

0

12,495

06

4,622

5,007

7

1,020

1,828

10

13,210

07

4,949

5,341

7

991

1,645

0

13,646

08

5,156

5,585

7

0

391

1,070

1,851

0

14,060

09

5,320

5,764

7

0

371

1,055

1,797

0

14,314

10

5,411

5,863

3

0

380

798

2,405

0

14,860

11

5,513

5,972

3

0

388

1,032

1,688

14,366

12

4

0

417

920

1,431

12,066

14,838

13

5

18

493

908

1,380

9,293

12,097

14

2

24

508

872

1,304

9,999

12,709

15

2

26

497

782

1,139

9,265

11,711

16

2

33

442

753

1,090

9,303

11,623

17

139

23

489

733

1,063

11,977

14,424

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

1,673

0

4,541

1983

1,759

0

4,303

1984

1,845

0

4,066

1985

1,930

0

3,828

1986

2,016

0

3,591

1987

1,840

4

3,353

1988

1,829

12

4,122

1989

1,818

14

4,891

1990

1,975

5

5,659

1991

2,132

19

6,428

1992

2,088

137

7,029

1993

1,890

170

7,631

1994

1,818

879

8,232

1995

1,909

1,669

8,834

1996

2,182

2,575

9,435

1997

2,268

3,932

10,321

1998

2,154

4,058

10,551

1999

2,250

4,118

10,781

2000

3,028

4,603

11,011

2001

3,016

5,503

9,053

2002

2,157

6,228

8,604

2003

2,243

7,229

9,243

2004

2,212

8,002

10,053

2005

2,182

10,933

79

12,495

2006

2,318

11,823

86

13,210

2007

2,123

12,751

77

13,646

2008

2,134

13,205

99

14,060

2009

2,056

13,983

27

14,314

2010

2,088

14,174

94

14,860

2011

2,047

14,300

395

14,366

2012

2,002

11,359

0

14,838

2013

2,005

14,638

0

12,097

14,588

2014

2,176

14,725

0

12,709

14,991

2015

2,133

14,532

0

11,711

14,950

2016

2,011

14,091

11,623

14,557

2017

1,708

12,716

14,424

15,684

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$140,766

Waiver+ (all)

$38,561

Waiver+ 0 to 21 years

$18,406

Waiver+ 22+ years

$47,201

Waiver by age in family home or not family home spending per person not available.

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Iowa

Beginning in FY 2017, Iowa was able to separate out people living in host or foster family settings more reliably resulting in higher numbers of people reported in those settings.