FY 2017 RISP State Profiles

Maine

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

1,800

400

680

907

299

314

80

0

4,480

99

1,800

522

1,035

907

520

459

99

162

5,504

00

2,000

1,000

1,850

960

309

330

78

0

6,527

01

184

346

419

854

712

219

77

0

2,811

02

427

450

747

901

697

235

43

0

3,500

03

657

471

677

935

724

284

42

13

3,803

04

552

475

668

964

861

203

86

0

3,809

05

599

568

728

939

996

202

49

0

4,081

06

404

566

774

698

733

159

38

468

3,840

07

311

413

743

1,080

839

210

20

0

3,616

08

529

443

609

1,278

721

192

38

212

4,022

09

464

375

609

1,104

608

214

0

0

3,374

10

387

303

418

1,201

657

65

32

0

3,063

11

264

285

360

1,369

645

110

33

0

3,066

12

1,563

541

793

1,304

775

116

117

52

5,261

13

1,575

400

754

1,285

626

113

58

98

5,113

14

1,342

310

714

1,261

498

114

58

182

4,479

15

136

384

524

1,263

459

124

32

305

3,143

16

629

684

1,270

436

124

32

411

3,586

17

729

729

1,352

445

129

16

1,707

5,107

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

630

0

1,464

1983

654

0

1,546

1984

677

75

1,628

1985

701

165

1,709

1986

724

353

1,791

1987

677

400

1,873

1988

673

450

1,909

1989

668

453

1,946

1990

662

454

1,982

1991

656

509

2,018

1992

630

509

2,154

1993

630

509

2,290

1994

542

742

2,427

1995

487

742

2,563

1996

445

1,000

2,699

1997

548

1,078

4,048

1998

309

1,345

4,480

1999

304

1,610

5,504

2000

298

1,834

494

6,527

2001

275

2,052

477

2,811

2002

246

2,440

504

3,500

2003

269

2,458

120

3,803

2004

225

2,549

120

3,809

2005

236

2,604

105

4,081

2006

211

2,666

107

3,840

2007

222

2,781

105

3,616

2008

210

2,867

69

4,022

2009

183

4,212

73

3,374

2010

97

4,288

337

3,063

2011

145

4,156

930

3,066

2012

189

4,101

85

5,261

2013

205

4,208

725

5,113

5,648

2014

171

4,308

957

4,479

5,925

2015

167

4,450

1,153

3,143

6,233

2016

162

4,881

977

3,586

6,541

2017

159

4,948

1,141

5,107

6,448

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$195,791

Waiver+ (all)

$69,976

Waiver+ 0 to 21 years

$37,888

Waiver+ 22+ years

$72,202

Waiver+ by age in family home or not family home spending per person not available.

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Maine

The estimated number of LTSS recipients in nonstate settings increased in FY 2017 because people in unknown setting types were counted for the first time. Setting sizes for people living in nonstate group settings other than ICF/IIDs were estimated. Four short-term state-operated IDD facilities are not counted since stays are limited to 90 days or less.