FY 2017 RISP State Profiles

Massachusetts

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

12,500

614

716

1,505

4,193

1,362

1,435

26

22,351

99

14,500

1,022

964

1,587

3,604

1,108

1,374

700

24,859

00

16,700

1,912

1,133

1,463

4,126

740

1,293

0

27,367

01

19,452

1,915

1,133

1,670

4,333

775

1,236

0

30,514

02

20,272

3,219

1,053

1,668

4,025

874

1,150

0

32,261

03

20,106

1,568

1,556

1,156

4,434

873

1,181

0

30,874

04

20,436

1,710

1,000

1,294

4,916

874

1,144

0

31,374

05

19,665

1,308

934

1,725

5,334

885

1,092

0

30,943

06

19,562

2,058

951

1,236

5,021

1,140

1,037

0

31,005

07

20,111

2,058

958

1,242

5,054

1,156

978

0

31,557

08

21,220

2,086

1,541

1,301

5,043

1,134

929

0

33,254

09

19,916

2,114

1,569

1,483

4,988

1,188

893

0

32,151

10

19,916

2,114

1,569

1,400

4,513

678

759

1,095

32,044

11

19,458

2,405

2,433

1,870

5,045

0

690

1,637

33,022

12

19,000

2,405

2,433

1,870

5,045

537

580

2,160

34,000

13

19,000

2,696

3,296

2,430

6,435

652

516

0

35,025

14

19,000

2,696

3,296

2,428

6,435

652

497

0

35,006

15

6,948

2,551

2,074

433

10,893

22,899

16

8,294

2,593

1,058

10,117

22,062

17

7,046

2,702

1,029

42

42

42

9,968

21,141

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

4,041

0

6,722

1983

3,965

0

6,816

1984

3,889

0

6,910

1985

3,813

235

7,004

1986

3,737

525

7,098

1987

3,698

593

7,192

1988

3,623

593

7,343

1989

3,548

1,210

7,494

1990

3,410

1,539

7,644

1991

3,272

1,700

7,795

1992

3,304

3,288

10,230

1993

3,520

3,288

12,665

1994

2,119

5,130

15,101

1995

1,990

7,800

17,536

1996

1,795

8,027

2,170

19,971

1997

1,598

8,027

2,583

19,971

1998

1,435

10,317

2,583

22,351

1999

1,346

10,678

2,800

24,859

2000

1,266

10,375

2,227

27,367

2001

1,210

11,196

1,869

30,514

2002

1,125

11,315

1,537

32,261

2003

1,136

11,764

1,139

30,874

2004

1,116

11,388

772

31,374

2005

1,049

11,126

372

30,943

2006

1,012

11,460

0

31,005

2007

952

11,962

0

31,557

2008

901

11,381

0

33,254

2009

866

11,861

0

32,151

2010

759

11,861

0

32,044

2011

677

11,924

33,022

2012

594

11,987

34,000

2013

516

12,368

0

35,025

34,447

2014

499

13,361

0

35,006

34,447

2015

433

13,798

22,899

35,438

2016

409

14,274

0

22,062

36,491

2017

396

15,354

0

21,141

36,747

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$246,247

Waiver+ (all)

$96,607

Waiver+ 0 to 21 years family home

$18,805

Waiver+ 22+ years family home

$612

Waiver+ 0 to 21 years not family home

$0

Waiver+ 22+ years not family home

$183,181

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Massachusetts

Beginning in FY 2015, the reported number of LTSS recipients in nonstate settings excludes people 21 years or younger living with a family member.