FY 2017 RISP State Profiles

New York

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

51,649

1,245

4,658

2,825

4,619

17,988

4,153

0

87,137

99

60,437

1,280

4,483

2,926

5,082

18,007

3,818

0

96,033

00

63,343

1,514

4,287

3,020

5,855

18,238

3,693

0

99,950

01

77,983

6,997

4,000

3,101

6,716

18,243

3,601

0

120,641

02

82,818

7,777

3,820

3,154

7,471

18,776

3,436

0

127,252

03

81,456

7,729

3,757

3,175

7,937

18,823

3,471

0

126,348

04

78,056

7,711

3,583

3,234

8,301

18,931

3,443

0

123,259

05

79,476

7,690

3,322

3,234

8,769

19,039

3,348

0

124,905

06

78,939

7,799

3,001

3,148

9,285

18,791

3,209

0

124,172

07

78,804

7,771

2,875

3,234

9,981

18,831

3,185

0

124,681

08

78,342

7,651

2,704

3,247

10,541

18,665

3,132

0

124,282

09

78,553

7,861

2,598

3,453

10,855

18,753

3,048

0

125,121

10

76,814

7,911

2,471

3,116

9,299

13,557

2,941

7,519

123,628

11

76,161

7,914

2,406

3,122

9,506

13,468

2,797

7,562

122,936

12

78,744

9,109

2,307

3,162

9,600

13,687

2,623

9,319

128,551

13

81,178

9,481

2,178

3,366

11,784

18,533

1,408

1,021

128,949

14

80,686

10,350

2,059

3,390

12,067

18,588

1,615

462

129,217

15

83,052

10,792

1,940

3,481

12,201

18,462

1,013

131,914

16

86,722

11,233

1,820

3,507

12,351

18,463

1,389

153

135,638

17

89,066

11,734

1,692

3,904

12,827

17,882

1,212

0

138,317

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

15,577

0

25,317

1983

15,958

0

25,717

1984

16,338

0

26,117

1985

16,719

0

26,517

1986

17,099

0

26,917

1987

17,567

0

27,317

1988

17,671

0

28,249

1989

17,774

0

29,182

1990

17,793

0

30,114

1991

17,812

0

31,046

1992

18,497

379

41,281

1993

21,850

3,398

51,515

1994

16,083

18,877

61,750

1995

12,386

23,199

71,984

1996

11,846

27,272

5,397

82,219

1997

11,472

29,019

6,611

84,538

1998

11,083

30,610

6,611

87,137

1999

10,230

33,699

6,611

96,033

2000

10,109

36,100

5,959

99,950

2001

9,923

40,165

4,395

120,641

2002

9,815

48,165

4,853

127,252

2003

9,467

48,921

5,041

126,348

2004

9,220

51,427

5,625

123,259

2005

8,558

51,486

5,273

124,905

2006

8,124

54,251

4,058

124,172

2007

7,995

56,401

4,130

124,681

2008

7,752

58,560

4,201

124,282

2009

7,664

62,195

4,409

125,121

2010

7,495

66,179

3,864

123,628

2011

7,432

69,136

4,217

122,936

2012

7,288

77,047

6,971

128,551

2013

7,127

79,491

128,949

128,271

2014

6,782

80,574

0

129,217

128,635

2015

6,502

83,739

0

131,914

131,789

2016

5,555

77,955

0

135,638

135,428

2017

5,742

82,656

0

138,317

138,163

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$184,621

Waiver+ (all)

$67,944

Waiver+ 0 to 21 years

$16,356

Waiver+ 22+ years

$82,870

Waiver by age in family home or not family home spending per person not available.

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for New York

While there is not a waiting list for Medicaid Waiver funding in New York, in FY 2017, an estimated 6,099 current service recipients with IDD indicated that they would like to move to supported housing within the next two years. New York reduced the number of state-operated ICFs/IID serving 16 or more people from 20 in March 2016 to six in March 2017. Three of those facilities were in the sample frame for the RISP FY 2017 Public Residential Facility Survey.