FY 2017 RISP State Profiles

Pennsylvania

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

From 2006-2016 LTSS recipients included people with case management alone

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

98

898

1,777

2,143

5,796

2,021

825

4,578

0

18,038

99

985

1,768

2,514

5,957

2,452

623

3,926

593

18,818

00

1,076

1,761

3,600

6,611

1,835

689

4,026

2,176

21,774

01

1,146

1,856

6,680

5,276

3,589

478

3,862

1,147

24,034

02

1,231

1,879

7,073

5,381

3,310

456

3,758

6,161

29,249

03

1,187

1,879

7,084

4,331

5,331

457

3,028

6,221

29,518

04

1,999

4,996

4,669

7,039

1,101

1,833

3,450

4,511

29,598

05

1,519

1,600

236

8,065

1,296

3,224

13,699

29,639

06

30,071

3,330

1,453

1,321

7,028

1,278

2,884

5

48,244

07

28,130

5,206

2,087

2,406

5,991

1,260

2,545

3,082

51,776

08

30,488

5,541

1,710

3,490

4,953

1,241

2,205

4,075

54,971

09

30,858

5,246

1,782

4,575

3,916

1,223

1,865

5,408

54,873

10

32,417

5,168

1,434

4,715

3,838

2,014

2,993

0

53,579

11

32,801

5,263

1,460

6,002

4,846

1,762

2,900

2,500

57,534

12

29,009

4,656

1,590

0

0

0

1,106

20,948

57,309

13

27,880

4,549

1,589

1,637

931

16,875

53,170

14

31,478

4,442

1,480

3,275

757

15,428

56,275

15

31,775

4,521

1,553

12,551

3,679

483

2,201

0

56,763

16

32,654

4,645

1,589

12,389

3,630

485

2,063

50

57,505

17

22,189

3,485

1,532

10,862

3,388

433

1,986

43

43,918

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

8,598

0

15,567

1983

8,383

0

15,415

1984

8,168

141

15,262

1985

7,952

269

15,110

1986

7,737

542

14,957

1987

7,364

1,203

14,805

1988

7,225

1,759

14,832

1989

7,085

1,930

14,858

1990

7,093

2,221

14,885

1991

7,100

2,333

14,911

1992

7,282

2,705

15,283

1993

6,768

3,795

15,656

1994

6,950

4,303

16,028

1995

6,800

5,525

16,401

1996

6,469

6,076

9,535

16,773

1997

6,192

8,931

5,000

17,378

1998

5,747

10,149

5,000

18,038

1999

5,098

10,119

2,309

18,818

2000

4,944

16,830

3,442

21,774

2001

4,521

19,513

1,123

24,034

2002

4,280

24,969

4,797

29,249

2003

3,968

25,550

917

29,518

2004

4,124

25,474

29,598

2005

4,058

24,894

5,149

29,639

2006

3,743

25,643

1,495

48,244

2007

3,833

26,558

2,023

51,776

2008

3,854

29,357

2,074

54,971

2009

3,939

30,393

2,095

54,873

2010

3,423

32,224

1,613

53,579

2011

3,567

32,824

1,855

57,534

2012

3,419

29,963

1,979

57,309

2013

3,247

29,079

5,814

53,170

53,170

2014

3,153

31,695

7,360

56,275

56,264

2015

3,024

32,628

5,493

56,763

61,713

2016

2,991

34,147

7,812

57,505

57,517

2017

2,851

34,911

8,499

43,918

58,437

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$211,585

Waiver+ (all)

$77,509

Waiver+ 0 to 21 years family home

$11,371

Waiver+ 22+ years family home

$37,271

Waiver+ 0 to 21 years not family home

$112,463

Waiver+ 22+ years not family home

$125,577

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Pennsylvania

In FY 2017, the estimated number of LTSS recipients living with a family member declined because Pennsylvania stopped reporting residential settings for individuals receiving case management but no other long-term services or supports.