RISP State Profiles FY 2019

Pennsylvania

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Size/Type Unknown

Family Home

Own Home

Host/Foster Family

Group 1-6

Group 7-15

Group 16+

LTSS Recipients

1998

0

898

1,777

2,143

7,817

825

4,578

18,038

1999

593

985

1,768

2,514

8,409

623

3,926

18,818

2000

2,176

1,076

1,761

3,600

8,446

689

4,026

21,774

2001

1,147

1,146

1,856

6,680

8,865

478

3,862

24,034

2002

6,161

1,231

1,879

7,073

8,691

456

3,758

29,249

2003

6,221

1,187

1,879

7,084

9,662

457

3,028

29,518

2004

4,511

1,999

4,996

4,669

8,140

1,833

3,450

29,598

2005

13,699

1,519

1,600

8,301

1,296

3,224

29,639

2006

5

30,071

3,330

1,453

8,349

1,278

2,884

48,244

2007

3,082

28,130

5,206

2,087

8,397

1,260

2,545

51,776

2008

4,075

30,488

5,541

1,710

8,443

1,241

2,205

54,971

2009

5,408

30,858

5,246

1,782

8,491

1,223

1,865

54,873

2010

0

32,417

5,168

1,434

8,553

2,014

2,993

53,579

2011

2,500

32,801

5,263

1,460

10,848

1,762

2,900

57,534

2012

20,948

29,009

4,656

1,590

0

0

1,106

57,309

2013

16,875

27,880

4,549

1,589

1,637

931

53,170

2014

15,428

31,478

4,442

1,480

3,275

757

56,275

2015

0

31,775

4,521

1,553

16,230

483

2,201

56,763

2016

50

32,654

4,645

1,589

16,019

485

2,063

57,505

2017

43

22,189

3,485

1,532

14,250

433

1,986

43,918

2018

2,318

22,712

3,368

1,476

12,077

414

1,869

44,234

2019

1,996

23,342

3,407

1,471

12,277

379

1,752

44,624

Medicaid Recipients by Funding Authority 1982 through 2019

Year

ICF/IID Residents

Waiver+ Recipients

Waiting for Medicaid Waivers

State Plan HCBS

1982

8,598

0

1983

8,383

0

1984

8,168

141

1985

7,952

269

1986

7,737

542

1987

7,364

1,203

1988

7,225

1,759

1989

7,085

1,930

1990

7,093

2,221

1991

7,100

2,333

1992

7,282

2,705

1993

6,768

3,795

1994

6,950

4,303

1995

6,800

5,525

1996

6,469

6,076

9,535

1997

6,192

8,931

5,000

1998

5,747

10,149

5,000

1999

5,098

10,119

2,309

2000

4,944

16,830

3,442

2001

4,521

19,513

1,123

2002

4,280

24,969

4,797

2003

3,968

25,550

917

2004

4,124

25,474

2005

4,058

24,894

5,149

2006

3,743

25,643

1,495

2007

3,833

26,558

2,023

2008

3,854

29,357

2,074

2009

3,939

30,393

2,095

2010

3,423

32,224

1,613

2011

3,567

32,824

1,855

2012

3,419

29,963

1,979

2013

3,247

29,079

5,814

2014

3,153

31,695

7,360

2015

3,024

32,628

5,493

2016

2,991

34,147

7,812

0

2017

2,827

34,911

8,499

0

2018

2,691

35,874

8,555

0

2019

2,540

36,938

7,186

0

Average Annual Per Person Spending by Age, Setting and Medicaid Authority in FY 2019

Medicaid Authority

Average Spending Per Person

ICF/IID (all)

$223,029

Waiver+ (all)

$92,347

Waiver+ 22+ years

$101,623

Waiver+ 0 to 21 years

$24,555

Waiver+ 22+ years not family home

$156,936

Waiver+ 0 to 21 years not family home

$111,426

Waiver+ 22+ years family home

$43,418

Waiver+ 0 to 21 years family home

$10,557

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

RISP

FY 2019 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2019 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2019

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Pennsylvania