FY 2017 RISP State Profiles

United States

RISP

Figures

Long Term Supports and Services Recipients with IDD by Residence Type and Year

Year

Family

Own Home

Foster/Host

Host/Foster IDD 1-3

IDD 4 to 6

7-15 Group

16+ Group

Unknown*

IDD 16+, NH, Psych

98

325,650

62,669

28,122

63,279

73,658

53,942

87,735

114,495

99

355,192

65,006

31,884

65,966

80,464

52,863

82,718

109,213

00

391,909

73,147

37,367

78,680

83,156

52,802

82,582

32,649

115,265

01

451,677

80,242

40,688

86,563

89,447

54,349

77,810

80,949

112,900

02

482,479

86,694

42,272

90,969

86,874

54,031

74,742

107,829

03

500,004

90,597

45,759

88,778

92,550

54,325

72,474

35,391

107,865

04

503,641

107,157

39,857

90,451

92,324

58,503

69,148

33,293

102,441

05

533,048

100,943

35,386

84,423

107,573

52,888

67,066

30,054

96,920

06

569,020

118,887

35,302

85,563

106,821

56,572

64,864

94,692

07

552,559

116,279

36,972

87,772

106,965

52,253

62,496

89,291

08

588,594

118,887

38,970

87,081

111,658

51,404

57,462

86,294

09

599,152

121,670

40,967

84,935

114,653

58,235

59,604

30,443

89,629

10

592,180

127,415

40,060

102,644

105,290

55,682

56,813

32,973

89,746

11

631,436

126,998

44,457

101,423

119,090

58,059

51,765

90,533

12

634,988

123,257

58,712

123,536

119,989

56,409

52,288

27,400

80,352

13

631,258

127,582

57,150

118,680

133,636

55,778

50,206

77,533

14

661,166

130,674

59,283

127,459

131,916

56,452

46,545

73,709

15

698,566

137,010

61,715

152,417

130,581

54,136

41,374

69,761

16

714,910

146,974

63,750

146,625

132,667

53,166

39,705

69,801

17

762,097

152,759

67,649

156,953

131,078

51,684

36,736

65,111

* Unknown setting type or size reported in FY 2017 and gaps in all other years

LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2017

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

140,752

1,381

243,849

1983

141,611

5,604

246,214

1984

142,471

17,972

248,579

1985

143,330

22,690

250,943

1986

144,189

17,180

253,308

1987

146,134

22,689

255,673

1988

146,641

28,689

264,095

1989

147,148

35,077

272,518

1990

146,903

39,838

280,940

1991

146,657

51,271

289,362

1992

146,260

62,429

349,526

1993

147,729

86,604

409,689

1994

142,118

122,075

469,853

1995

134,384

149,185

530,016

1996

129,449

190,230

87,187

590,180

1997

126,697

221,909

639,190

1998

124,248

239,021

761,218

1999

117,917

261,788

66,246

720,249

2000

116,441

291,255

71,922

766,454

2001

113,907

327,942

69,787

833,965

2002

110,572

373,946

59,818

878,132

2003

107,065

401,904

75,288

902,285

2004

104,526

422,395

88,841

923,843

2005

101,821

443,606

73,828

946,141

2006

98,544

479,196

84,523

993,615

2007

96,427

501,864

88,349

990,166

2008

93,164

529,052

114,916

1,025,460

2009

87,373

562,067

122,870

1,038,667

2010

87,560

592,070

115,059

1,040,279

2011

84,870

656,329

76,677

1,092,033

2012

85,384

688,410

79,102

1,138,121

2013

83,262

709,870

245,474

1,112,542

1,320,367

2014

80,567

740,032

209,523

1,148,844

1,370,654

2015

78,035

774,964

199,447

1,209,151

1,464,526

2016

74,614

807,462

193,828

1,228,700

1,488,732

2017

73,855

806,500

182,340

1,278,602

1,478,425

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2017

Medicaid Authority

Cost/Person

ICF/IID (all)

$140,057

Waiver+ (all)

$44,983

Waiver+ 0 to 21 years family home

$11,363

Waiver+ 22+ years family home

$25,027

Waiver+ 0 to 21 years not family home

$50,411

Waiver+ 22+ years not family home

$76,216

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabililties Group: Number of people with IDD in a setting (ICF/IID, group home or other) Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

Larson, S.A., Taylor, B., Pettingell, S., Sowers, M., & Bourne, M.L. (2020). In-home and residential long-term supports and services for persons with intellectual or developmental disabilities: Status and trends through 2017. Minneapolis: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.

This project is funded through a cooperative agreement from the Administration on Community Living, U.S. Department of Health and Human Services Grant #90DNPA0001-01.

FY 2017 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2017 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Wavier-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2017

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).