RISP State Profiles FY 2023
Illinois
Profiles show longitudinal changes in residential settings for long-term supports and services (LTSS) recipients with IDD, Medicaid Waiver waiting lists, LTSS recipients and annual per person expenditures by funding authority, and characteristics of state IDD agency caseloads. State fiscal years are July 1 to June 30 unless otherwise specified in state notes.
Blank spaces or breaks in a trend line show years the RISP survey did not include the data element or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methods, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients.
State notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. See survey questions and operational definitions here.
Long-Term Supports and Services Recipients with IDD by Residence Type and Year
This chart shows the number of long-term supports and services (LTSS) recipients with intellectual and developmental disabilities (IDD) by type and size of settings by year. Setting size refers to the number of people with IDD sharing a home. Setting type unknown is shown when states could not report on all setting types or could not tell the difference between people living in their own homes and those living with family members. Click on the button at the top right to see the numbers behind the chart.
- Family homes are residences shared by a person with IDD and their related family members.
- Own homes are homes owned or rented by one or more adults with IDD.
- Host or foster family homes are homes owned or rented by an individual or family that provide supportive services to one or more people with IDD.
- Group settings are residences owned, rented, or managed by the organization or agency that provides services to people living in the home.
Medicaid Recipients by Funding Authority 1982 through 2023
This chart shows changes in the number of people getting LTSS funded by different Medicaid authorities, and the number of people with IDD living with family members or in their own homes who were waiting for but not yet receiving Medicaid Waiver-funded services. The lines begin either when the state began offering that service or when RISP began tracking that data point. Only Texas reports on recipients of both 1915(i) and (k) services. While unlikely, if anyone receives both of these services, they are likely counted twice. Click on the button at the top right to see the numbers behind the chart.
Average Annual Per Person Spending by Age and Funding Authority for FY 2023
This chart shows average annual per person LTSS expenditures by funding authority for the specified fiscal year. Funding authorities include Medicaid ICF/IID, Medicaid Home and Community-Based Services (HCBS) Waiver, Medicaid State Plan, and state or local funding authorities. Click on the button at the top right to see the numbers behind the chart.
Demographic Characteristics of People Known to or Served by State IDD Agencies
| Caseload Characteristic | 2018 | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|---|
| Total People on IDD Agency Caseload | 41,087 | 43,200 | 42,115 | 43,934 | 45,385 | 44,192 |
| Total LTSS Recipients | 30,832 | 31,182 | 31,225 | 31,119 | 31,418 | 31,440 |
| On caseload (no LTSS except case management) | 10,339 | 19,108 | 14,682 | 14,014 | 14,044 | 12,826 |
| Percent Age 21 years or younger | 23% | 23% | 21% | 25% | 24% | 25% |
| Deaths per 1,000 22 years or older | ||||||
| Total people in large state IDD facilities | 1,628 | 1,640 | 1,613 | 1,612 | 1,604 | 1,588 |
This table shows characteristics of people on state IDD agency caseloads by fiscal year. RISP defines the caseload as all people known by the IDD agency to be eligible for services, whether they receive services or not. People on the caseload but not receiving LTSS can include people waiting for LTSS, people getting only case management services, and people who declined LTSS. This table also shows the percent of people on the caseload who were 21 years or younger and the number of adults (aged 22 and older) who died per 1,000 people on the caseload. It also lists the total number of people living in state IDD facilities housing 16 or more people.
Race and Ethnicity of People Known to or Served by State IDD Agencies
These graphs show the percentage of people on IDD agency caseloads in each race and ethnicity category for the specified fiscal year. RISP began tracking race and ethnicity data in FY 2022. Click on the button at the top right to see the numbers behind the chart.
State Notes for Illinois
Illinois’s race and ethnicity data are estimated based on proportions reported in annual surveys of segments of the full caseload. Before 2020, Illinois’s reports on state- or locally funded non-Medicaid services included some duplicated people. Since then, the recipients and expenditures for this funding authority were estimated by Illinois. Prior to FY 2016, the number of people with IDD reported to be waiting for services included some people who were already receiving Medicaid Waiver-funded supports. Beginning in FY 2016, only people living with a family member or in their own home who requested Medicaid Waiver-funded supports to begin within the next 12 months are counted. The number of people waiting for Waiver services and waiting to move is estimated based on the proportion of about 20% of people on Illinois’ waitlist typically are looking to move into residential services. Before FY 2019, Illinois’s surveys included some people with primary diagnoses of mental health disorders who lived in PRFs.
Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)
For more see risp.umn.edu