RISP State Profiles FY 2020

Year	Size/Type Unknown	Family Home	Own Home	Host/Foster Family	Group 1-6	Group 7-15	Group 16+	LTSS Recipients
1998	0	9,391	798	116	3,149	5,193	8,324	26,971
1999	1,238	9,227	674	109	3,503	5,241	8,136	28,128
2000	0	11,864	1,579	93	3,767	5,395	7,676	30,284
2001	0	11,864	1,579	93	3,677	5,395	7,633	30,241
2002	0	11,864	1,579	93	3,677	5,395	7,633	30,241
2003	0	11,864	1,579	93	3,677	5,395	7,419	30,027
2004	0	7,721	7,721	252	3,681	6,113	6,959	32,447
2005	0	11,324	3,775	245	3,716	6,463	6,660	32,183
2006	0	11,005	3,669	216	3,895	6,612	6,452	31,849
2007	0	10,762	3,550	201	3,716	7,067	6,178	31,474
2008	0	12,516	4,172	209	3,869	7,179	6,041	33,935
2009	0	12,248	4,083	189	3,909	7,357	5,773	33,559
2010	0	11,996	3,999	254	3,999	7,703	5,545	33,496
2011	0	9,000	3,000	235	4,667	8,971	5,073	30,946
2012	144	9,708	1,884	244	4,769	8,202	5,223	30,173
2013	0	10,416	767	260	4,401	7,193	5,116	28,153
2014	241	11,258	709	216	4,871	7,242	4,773	29,310
2015	1	11,390	733	255	5,210	7,467	4,535	29,591
2016	554	11,477	1,681	273	4,467	7,543	4,364	30,359
2017	0	12,578	1,983	304	4,389	7,187	4,372	30,813
2018	0	12,627	1,969	302	4,361	7,164	4,289	30,712
2019	0	13,011	1,961	322	4,389	7,116	4,276	31,075
2020	0	13,411	1,770	318	4,418	7,117	4,086	31,120

Year	ICF/IID Residents	Waiver+ Recipients	Waiting for Medicaid Waivers	1915 (i) or (k)	Other State Plan HCBS
1982	8,144	0
1983	8,346	0
1984	8,549	40
1985	8,751	543
1986	8,953	543
1987	10,346	664
1988	10,605	637
1989	10,864	680
1990	11,404	724
1991	11,943	1,338
1992	12,311	2,006
1993	12,160	2,850
1994	10,979	4,590
1995	10,935	3,761
1996	10,416	5,267
1997	10,500	5,400
1998	10,789	6,037
1999	10,678	6,500
2000	10,310	6,787
2001	10,267	6,787
2002	9,923	6,787
2003	10,053	9,785
2004	9,723	9,727
2005	9,592	10,457
2006	9,402	12,409
2007	9,213	12,800
2008	9,023	14,496	10,446
2009	8,525	15,302	12,289
2010	8,567	16,954	15,042
2011	8,460	18,108	14,905
2012	8,344	18,355	12,076
2013	7,852	20,300	22,999
2014	7,360	21,226	22,000
2015	6,788	22,141	17,566
2016	6,615	23,744	9,725	0
2017	6,593	22,810	10,778	0
2018	6,512	23,138	10,339	0
2019	6,380	23,588	16,147	0
2020	6,218	23,771	15,719	0	0

Medicaid Authority	Average Spending Per Person
ICF/IID (all)	$110,038
Waiver+ (all)	$47,064
Waiver+ 22+ years	$47,806
Waiver+ 0 to 21 years	$38,508
Waiver+ 22+ years not family home	$67,800
Waiver+ 0 to 21 years not family home	$107,005
Waiver+ 22+ years family home	$27,408
Waiver+ 0 to 21 years family home	$22,967

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2020 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2020 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2020

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Illinois

Prior to FY 2016, the number of people with IDD reported to be waiting for services included some people who were already receiving Medicaid waiver-funded supports. Beginning in FY 2016, only people living with a family member or in their own home who requested Medicaid waiver-funded supports to begin within the next 12 months are counted. Before FY 2019, Illinois's surveys included some people with primary diagnoses of mental health disorders who lived in PRFs.