FY 2018 RISP State Profiles

New York

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown*

LTSS Recipients

1998

51,649

1,245

4,658

2,825

4,619

17,988

4,153

0

87,137

1999

60,437

1,280

4,483

2,926

5,082

18,007

3,818

0

96,033

2000

63,343

1,514

4,287

3,020

5,855

18,238

3,693

0

99,950

2001

77,983

6,997

4,000

3,101

6,716

18,243

3,601

0

120,641

2002

82,818

7,777

3,820

3,154

7,471

18,776

3,436

0

127,252

2003

81,456

7,729

3,757

3,175

7,937

18,823

3,471

0

126,348

2004

78,056

7,711

3,583

3,234

8,301

18,931

3,443

0

123,259

2005

79,476

7,690

3,322

3,234

8,769

19,039

3,348

0

124,905

2006

78,939

7,799

3,001

3,148

9,285

18,791

3,209

0

124,172

2007

78,804

7,771

2,875

3,234

9,981

18,831

3,185

0

124,681

2008

78,342

7,651

2,704

3,247

10,541

18,665

3,132

0

124,282

2009

78,553

7,861

2,598

3,453

10,855

18,753

3,048

0

125,121

2010

76,814

7,911

2,471

3,116

9,299

13,557

2,941

7,519

123,628

2011

76,161

7,914

2,406

3,122

9,506

13,468

2,797

7,562

122,936

2012

78,744

9,109

2,307

3,162

9,600

13,687

2,623

9,319

128,551

2013

81,178

9,481

2,178

3,366

11,784

18,533

1,408

1,021

128,949

2014

80,686

10,350

2,059

3,390

12,067

18,588

1,615

462

129,217

2015

83,052

10,792

1,940

3,481

12,201

18,462

1,013

131,914

2016

86,722

11,233

1,820

3,507

12,351

18,463

1,389

153

135,638

2017

89,066

11,734

1,692

3,904

12,827

17,882

1,212

0

138,317

2018

89,066

11,795

1,584

3,945

13,088

17,619

1,195

0

138,292

* Setting type or size not reported

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2018

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers

LTSS Recipients

Caseload

1982

15,577

0

25,317

1983

15,958

0

25,717

1984

16,338

0

26,117

1985

16,719

0

26,517

1986

17,099

0

26,917

1987

17,567

0

27,317

1988

17,671

0

28,249

1989

17,774

0

29,182

1990

17,793

0

30,114

1991

17,812

0

31,046

1992

18,497

379

41,281

1993

21,850

3,398

51,515

1994

16,083

18,877

61,750

1995

12,386

23,199

71,984

1996

11,846

27,272

5,397

82,219

1997

11,472

29,019

6,611

84,538

1998

11,083

30,610

6,611

87,137

1999

10,230

33,699

6,611

96,033

2000

10,109

36,100

5,959

99,950

2001

9,923

40,165

4,395

120,641

2002

9,815

48,165

4,853

127,252

2003

9,467

48,921

5,041

126,348

2004

9,220

51,427

5,625

123,259

2005

8,558

51,486

5,273

124,905

2006

8,124

54,251

4,058

124,172

2007

7,995

56,401

4,130

124,681

2008

7,752

58,560

4,201

124,282

2009

7,664

62,195

4,409

125,121

2010

7,495

66,179

3,864

123,628

2011

7,432

69,136

4,217

122,936

2012

7,288

77,047

6,971

128,551

2013

7,127

79,491

128,949

128,271

2014

6,782

80,574

0

129,217

128,635

2015

6,502

83,739

0

131,914

131,789

2016

5,555

77,955

0

135,638

135,428

2017

5,742

82,656

0

138,317

138,163

2018

5,110

85,055

0

138,292

138,559

Average Spending Per Person by Medicaid Authority in Fiscal Year 2018

Medicaid Authority

Average Spending Per Person

Waiver+ 22+ years

$85,814

Waiver+ 0 to 21 years

$17,992

Waiver+ (all)

$69,876

State Plan HCBS

$3,166

ICF/IID (all)

$188,906

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2018 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2018 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2018

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for New York

The 6,205 people reported to be waiting to move to a setting other than the home of a family member in FY 2018 represent the number of people who have expressed interest in Office for People with Developmental Disabilities supported housing who are not currently living in this setting. They may or may not currently live in family home or own home setting.