RISP State Profiles FY 2020

Year	Size/Type Unknown	Family Home	Own Home	Host/Foster Family	Group 1-6	Group 7-15	Group 16+	LTSS Recipients
1998	1,753	968	654	679				4,054
1999	0	3,138	717	809	1,864	390	269	7,187
2000	0	3,188	805	1,278	2,150	509	221	8,151
2001	0	3,937	809	1,615	2,253	479	289	9,382
2002	0	3,253	805	1,719	2,255	449	130	8,611
2003	0	3,901	710	1,745	2,159	429	130	9,074
2004	0	4,097	691	1,820	2,102	424	125	9,259
2005	-180	3,648	697	1,967	2,106	434	143	8,815
2006	0	4,762	699	2,044	2,159	409	91	10,164
2007	0	5,423	743	2,186	2,338	406	94	11,190
2008	0	6,382	705	2,309	2,343	331	83	12,153
2009	0	8,079	744	2,125	2,383	338	74	13,743
2010	138	8,589	764	2,655	1,907	191	626	14,870
2011	138	9,822	722	2,848	2,150	188	349	16,217
2012	303	10,479	764	3,273	2,456	218	27	17,520
2013	0	10,483	757	3,272	3,024	231	36	17,803
2014	0	11,448	780	3,401	3,116	195	38	18,978
2015	0	12,551	807	3,494	3,283	161	24	20,320
2016	0	12,836	807	3,227	3,405	174	47	20,496
2017	2	17,687	709	3,292	2,967	118	24	24,799
2018	0	14,153	708	3,304	2,990	97	25	21,277
2019	0	15,087	711	3,378	3,030	96	25	22,327
2020	0	16,099	742	3,467	3,128	73	0	23,509

Year	ICF/IID Residents	Waiver+ Recipients	Waiting for Medicaid Waivers	1915 (i) or (k)	Other State Plan HCBS
1982	1,918	1,360
1983	1,833	1,886
1984	1,748	1,992
1985	1,662	973
1986	1,577	572
1987	1,284	832
1988	1,163	968
1989	1,042	1,218
1990	906	1,282
1991	770	2,177
1992	668	1,458
1993	468	2,023
1994	417	2,136
1995	442	2,500
1996	429	2,523	3,505
1997	373	2,586	2,250
1998	350	3,704	2,250
1999	173	5,500	2,277
2000	60	5,824	2,732
2001	64	7,225	3,117
2002	51	8,017	1,200
2003	50	7,214	3,155
2004	50	8,280	3,156
2005	43	8,863	1,570
2006	41	9,416	3,075
2007	41	10,287	3,616
2008	32	10,879	3,260
2009	22	10,884	3,399
2010	22	12,495	3,219
2011	0	13,228	0
2012	0	14,865	0
2013	0	17,735	0
2014	0	16,922	0
2015	0	6,932	0
2016	0	12,548	0	20,308
2017	0	21,200	0	20,577
2018	0	24,140	0	21,390
2019	0	28,170	0	23,467
2020	0	29,446	0	23,794	0

Medicaid Authority	Average Spending Per Person
State Plan HCBS	$54,593
Waiver+ (all)	$6,168
Waiver+ 22+ years	$7,217
Waiver+ 0 to 21 years	$4,586
Waiver+ 22+ years not family home	$7,511
Waiver+ 0 to 21 years not family home	$7,612
Waiver+ 22+ years family home	$6,852
Waiver+ 0 to 21 years family home	$4,237

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2020 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2020 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2020

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).

State Notes for Oregon

Previous years’ reporting was based on licensed size of residential settings, but FY 2020 is reported based on number of people per home. Oregon began offering HCBS through the Medicaid State Plan 1915(k) funding authority in FY 2015. Total Medicaid Waiver recipients and expenditures declined shortly thereafter as recipients moved from Waiver to State Plan 1915(k) funding. However, FY 2020 was the first full year that case management was funded based on an individual’s Medicaid eligibility rather than a procedure code entered by field staff. This, along with regular caseload growth, greatly increased the number of individuals receiving a Waivered service, as case management remains a service offered on the Waiver.