FY 2018 RISP State Profiles

United States

RISP

Figures

IDD Agency Long Term Supports and Services Recipients by Residence Type

Year

Family

Own Home

Foster/Host

1-3 Group

4-6 Group

7-15 Group

16+ Group

Unknown

LTSS Recipients

1998

325,650

62,669

28,122

35,185

73,659

53,942

88,569

674,044

1999

355,192

65,006

31,884

45,262

69,284

52,863

82,166

701,083

2000

391,909

73,147

37,367

41,313

83,156

52,802

82,582

9,491

771,767

2001

451,677

80,242

40,688

45,875

45,875

54,349

77,180

40,382

833,965

2002

482,479

86,694

42,272

48,697

86,874

54,031

77,085

875,219

2003

500,004

90,597

45,759

43,019

92,550

54,325

70,596

5,435

902,285

2004

503,641

107,157

39,857

50,594

92,324

58,503

67,930

3,837

923,843

2005

533,048

100,943

35,386

49,037

107,573

52,888

67,066

200

946,141

2006

569,020

118,887

35,302

50,261

106,821

56,572

72,300

993,615

2007

552,559

116,279

36,972

101,019

72,464

52,253

58,620

0

990,166

2008

588,594

118,887

38,970

97,312

73,107

51,404

57,187

0

1,025,460

2009

599,152

121,670

40,967

43,968

114,653

58,235

59,604

418

1,038,667

2010

592,180

127,415

40,060

62,584

105,290

55,682

57,028

40

1,040,279

2011

631,436

126,998

44,457

53,492

122,451

58,059

55,140

1,092,033

2012

634,988

123,257

58,712

68,781

116,159

56,409

50,671

29,144

1,138,121

2013

631,258

127,582

57,150

64,381

126,187

55,778

50,206

0

1,112,542

2014

661,166

130,674

59,283

70,006

124,721

56,452

46,545

0

1,148,844

2015

698,566

137,010

61,715

92,576

123,774

54,136

41,374

0

1,209,151

2016

714,910

146,974

63,750

87,403

122,792

53,166

39,705

0

1,228,700

2017

762,097

152,759

67,649

84,891

118,313

51,684

38,310

0

1,275,703

2018

792,030

153,092

63,689

81,377

126,010

55,758

36,698

27,477

1,336,131

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers* 1982-2018

Year

Medicaid ICF/IID Residents

Medicaid Waiver+ Recipients

Waiting for Medicaid Waivers*

LTSS Recipients

Caseload *

1982

140,752

1,381

243,849

1983

141,611

5,604

246,214

1984

142,471

17,972

248,579

1985

143,330

22,690

250,943

1986

144,189

17,180

253,308

1987

146,134

22,689

255,673

1988

146,641

28,689

264,095

1989

147,148

35,077

272,518

1990

146,903

39,838

280,940

1991

146,657

51,271

289,362

1992

146,260

62,429

349,526

1993

147,729

86,604

409,689

1994

142,118

122,075

469,853

1995

134,384

149,185

530,016

1996

129,449

190,230

87,187

590,180

1997

126,697

221,909

639,190

1998

124,248

239,021

761,218

1999

117,917

261,788

66,246

720,249

2000

116,441

291,255

71,922

766,454

2001

113,907

327,942

69,787

833,965

2002

110,572

373,946

59,818

878,132

2003

107,065

401,904

75,288

902,285

2004

104,526

422,395

88,841

923,843

2005

101,821

443,606

73,828

946,141

2006

98,544

479,196

84,523

993,615

2007

96,427

501,864

88,349

990,166

2008

93,164

529,052

114,916

1,025,460

2009

87,373

562,067

122,870

1,038,667

2010

87,560

592,070

115,059

1,040,279

2011

84,870

656,329

76,677

1,092,033

2012

85,384

688,410

79,102

1,138,121

2013

83,262

709,870

245,474

1,112,542

1,320,367

2014

80,567

740,032

209,523

1,148,844

1,370,654

2015

78,035

774,964

199,447

1,209,151

1,464,526

2016

74,614

807,462

193,828

1,228,700

1,488,732

2017

70,956

860,108

182,340

1,275,703

1,478,425

2018

70,046

879,062

208,889

1,336,131

1,546,869

* Caseload of the State ID/DD Agency, Waiting while living in the home of a family member

Average Spending Per Person by Medicaid Authority in Fiscal Year 2018

Medicaid Authority

Average Spending Per Person

Waiver+ 22+ years not family home

$73,487

Waiver+ 0 to 21 years not family home

$49,496

Waiver+ 22+ years family home

$28,313

Waiver+ 0 to 21 years family home

$14,813

Waiver+ (all)

$47,835

ICF/IID (all)

$137,560

Intellectual or Developmental Disabilities (IDD); LTSS: Long-Term Supports and Services; ICF/IID: Intermediate Care Facilities for Individuals with Intellectual Disabilities; Group: Number of people with IDD in a setting (ICF/IID, group home or other); Waiver+: Medicaid Authorities 1115, 1915 (a)(b)or (b/c), 1915(c)

For more see risp.umn.edu

FY 2018 Profile

Profiles show longitudinal changes in residential settings for LTSS recipients with IDD, state IDD agency caseloads, Medicaid Waiver waiting lists and Medicaid recipients by funding authority. They also show FY 2018 expenditures per person by funding authority, setting type, and age. Blank spaces or breaks in a trend line indicate years in which a data element was not collected or for which a state provided incomplete or no data. Large year-to-year changes often reflect changes in state data sources or methodology, the addition or termination of a funding authority, or inclusion of a narrower or broader set of recipients. The State Notes describe variations from the survey definitions, alternative data sources used, reasons for large year-to-year changes, and other factors affecting data interpretation. Additional national and state data can be viewed in the RISP project’s Chart Gallery at https://risp.umn.edu/viz. Survey questions and operational definitions can be found in the Publications section of the RISP website.

IDD Agency Long Term Supports and Services Recipients by Residence Type

The first chart shows the number of long-term supports and services (LTSS) recipients by residence type (family home, own home, host or foster family home, and group homes) by year. Group settings such as ICFs/IID or Medicaid Waiver-funded group homes are broken down according to the number of people with IDD sharing the home (1 to 3, 4 to 6, 7 to 15 or 16 or more).

Caseload, LTSS and Medicaid Recipients and Waiting for Waivers

The second chart shows changes over time in the number people served by state IDD agencies, the number of people with IDD receiving one or more LTSS in addition to case management, and the number of people with IDD waiting for Medicaid Waiver funded services while living with a family member or in their own home. The waiting list numbers do not include people who already live in a group home or another LTSS setting or who already receive some Medicaid Waiver funded supports. The chart also shows changes in the number of LTSS recipients whose services are funded under the Medicaid ICF/IID program, or under one of several Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)).

Average Annual Medicaid Per Person Expenditures for FY 2018

The third chart shows average annual per person expenditures for people with IDD living in an ICF/IID, or who receive LTSS funded by specific Medicaid Waiver funding authorities (1115, 1915 (a)(b)or (b/c), 1915(c)). When available, for Medicaid Waiver recipients, annual per person expenditures are also broken down by recipient age as of June 30 (birth to 21 years or 22 years or older) and by living arrangement (family home or any other setting).